Tag: thalassemia
Monday, March 25th, 2024
Here are a list of Care Walk Locations! Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way, […]
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Tuesday, March 19th, 2024
The Cooley’s Anemia Foundation is pleased to announce that the 2024 Patient-Family Conference will be held from July 12-14 at the Renaissance Concourse Atlanta Airport Hotel. During registration, you will have the option to choose whether you would like to attend in person or virtually. If you choose to attend virtually, only the sessions on […]
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: Front Page, info thalassemia, Links, medical professional, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: Cooley's anemia, patient-family conference, people with thalassemia, registration, Thal Pals, thalassemia, thalassemia care, thalassemia community, thalassemia major, thalassemia patient, what is thalassemia
Tuesday, February 6th, 2024
Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Click here to register for Care Walk!! […]
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Wednesday, January 17th, 2024
The FDA has approved Vertex and CRISPR’s gene-editing therapy Casgevy to treat beta thalassemia. Casgevy becomes the first therapy for the rare blood disorder to use the innovative CRISPR gene-editing technology. Vertex Pharmaceuticals and CRISPR Therapeutics have scored an FDA approval for their gene-editing therapy Casgevy (exa-cel) to treat transfusion-dependent beta thalassemia (TDT). The approval […]
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: Blog, Front Page, info thalassemia, Links, Medical Research, News, person with thalassemia
: beta thalassemia cure, beta-thalassemia, casgevy, Cooley's anemia, CRISPR, gene editing, gene therapy, medical research, pharma, thalassemia, thalassemia cure, thalassemia treatment, vertex
Wednesday, January 3rd, 2024
Agios Announces Phase 3 ENERGIZE Study of Mitapivat Met Primary Endpoint and Both Key Secondary Endpoints in Adults with Non-Transfusion-Dependent Alpha- or Beta-Thalassemia January 3, 2024 – Agios Pharmaceuticals, Inc. today announced that the global Phase 3 ENERGIZE study of mitapivat in adults with non-transfusion-dependent (NTD) alpha- or beta-thalassemia achieved its primary endpoint of […]
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Tuesday, September 19th, 2023
Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way! Care Walk is set up […]
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Monday, September 18th, 2023
The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]
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: about thalassemia, CDC, Cooley's anemia, Thalassaemia International Federation, thalassemia, thalassemia care, thalassemia patients, what is thalassemia
Monday, September 18th, 2023
The Cooley’s Anemia Foundation sponsors incentive awards for thalassemia patients to further their education and career goals. These awards will be given in March, 2024. The purpose of these Incentive Awards is to inspire patients to further their education and career goals and to help them live positively with thalassemia. Requirements: Applicant must be diagnosed […]
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: CDC, Cooley's anemia, patient incentives, thalassemia, thalassemia care, thalassemia major, thalassemia patient, thalassemia patient care, thalassemia patients, what is thalassemia
Wednesday, August 30th, 2023
The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Clinical Trials in Thalassemia Cell & Gene Therapy Clinical Research Application Research Fellowship Application Details are as follows: CLINICAL TRIALS IN THALASSEMIA CELL AND GENE THERAPY The Cooley’s Anemia Foundation invites […]
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: Front Page, Grants & Fellowships, info thalassemia, Medical Research, News, person with thalassemia
: clinical research, clinical trials, fellowships, gene therapy, grants, medicial research, thalassemia, thalassemia research
Thursday, July 20th, 2023
We are delighted to share with you TIF’s latest publication for patients living with thalassemia, sickle cell disease (SCD) and other rare anemias and their families entitled ‘Travel Guidance for Patients and Families’.
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: anemia, Cooley's anemia, rare anemia, sickle cell, Thalassaemia International Federation, thalassemia, TIF, travel guidance