Tag: thalassemia

CAF Posts New “Guide to Living with Thalassemia” for Download

September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here.  (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]

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School Toolkit for Thalassemia Now Available for Download

August 21, 2013 – If you or your child needs to talk with school personnel about your experience with thalassemia and how it may impact attendance or schoolwork, CAF has a new publication that can help: The School Toolkit for People with Transfusion-Dependent Thalassemia. Over the years, the Cooley’s Anemia Foundation has heard from some patients […]

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CAF Funds $375,000 in Important Thalassemia Research Areas

July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy?  Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart?  Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]

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Study Examines MRI-Based Iron Measurements

July 11, 2013 – A study recently published in the medical journal Magnetic Resonance in Medicine concludes that Spin-Density Projection-Assisted MRI measurement of liver iron concentration (LIC) is “a reliable and accurate method for estimation of LIC that is suitable for diagnosis and management of patients with iron overload.” The study, entitled “Multicenter validation of […]

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June 14 is World Blood Donor Day

June 14, 2013 – Today is World Blood Donor Day, a day to celebrate the generosity of all those who donate blood and to raise awareness of the need for blood donations. Individuals with thalassemia, many of whom require red blood cell transfusions on a regular basis, are aware of the importance of blood donation.  […]

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Hit a Homer at the Cooley’s Anemia Night with the Mets

June 5, 2013 – Help the Cooley’s Anemia Foundation and the New York Mets hit one out of the field for those with thalassemia! On August 23, it’s Cooley’s Anemia Night at Citi Field in Queens, NY as the Amazin Mets take on the Detroit Tigers!  In an effort to create awareness about Cooley’s anemia, […]

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