Tag: thalassemia

Health Maintenance for Thalassemia Patients aged 50 Years and Older

Health Maintenance Award for Thalassemia Patients 50 years and older

The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.

Read more


Travel Support to Treatment Centers for Thalassemia Patients

Travel Support for Thalassemia Patients

The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.

Read more


CAF Awards $200,000 in Medical Research Fellowships

We’re proud to announce two new Cooley’s Anemia Foundation Medical Research Fellowships and two renewal Medical Research Fellowships for the 2023-2024 grant cycle. The total amount of funding for the two research Fellowships is $200,000. These Fellowship recipients were assessed on the basis of the quality of the scientific content, the academic accomplishments and future […]

Read more


Agios Launches Advocacy Advisory Council for Thalassemia, PK Deficiency, SCD

The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.

Read more


Join CAF’S Westchester-Rockland Chapter for a “Night at the Races” April 1

The Cooley’s Anemia Foundation’s Westchester-Rockland Chapter welcomes all to experience its 25th annual “Night at the Races” benefit on April 1, 2023.

Read more





CAF Board Exec Maria Hadjidemetriou Represents Thalassemia Community in Maybelline Campaign

CAF Board Exec Maria Hadjidemetriou stars in Maybelline's "We Speak" diversity campaign.

When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.

Read more


FDA Approves bluebird bio’s ZYNTEGLO®, the First Gene Therapy for People with Transfusion-Dependent Beta-Thalassemia

zynteglo approved for beta-thalassemia

bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.

Read more


Secured By miniOrange