January 29, 2014 – Registration is open for the Cooley’s Anemia Foundation’s 2014 Care Walk on May 4, 2014! Be a part of this important community builder and fund raiser to fight thalassemia! Click here to learn more!
January 29, 2014 – Registration is open for the Cooley’s Anemia Foundation’s 2014 Care Walk on May 4, 2014! Be a part of this important community builder and fund raiser to fight thalassemia! Click here to learn more!
January 10, 2014 – Residents of Staten Island, NY: Our Lady of Pity Church and the Staten Island Chapter of Cooley’s Anemia Foundation are hosting their annual winter blood drive on Sunday, January 26, from 8:15 a.m. to 2:15 p.m. Please make a special effort to come and donate blood if you are able! Information: […]
September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here. (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]
August 21, 2013 – If you or your child needs to talk with school personnel about your experience with thalassemia and how it may impact attendance or schoolwork, CAF has a new publication that can help: The School Toolkit for People with Transfusion-Dependent Thalassemia. Over the years, the Cooley’s Anemia Foundation has heard from some patients […]
July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy? Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart? Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]
July 11, 2013 – A study recently published in the medical journal Magnetic Resonance in Medicine concludes that Spin-Density Projection-Assisted MRI measurement of liver iron concentration (LIC) is “a reliable and accurate method for estimation of LIC that is suitable for diagnosis and management of patients with iron overload.” The study, entitled “Multicenter validation of […]
July 11, 2013 – Liver problems are often a problem for people with thalassemia. Here are some steps that you can take to help prevent them: Learn more about liver issues in thalassemia. Click here.
June 14, 2013 – It’s the New York Mets vs. the Atlanta Braves on July 22 and here’s a chance for you to take in an awesome game and do some awesome good at the same time. The Queens chapter of CAF invites you to watch this action-packed game from the Modell’s Clubhouse at Citi […]
June 14, 2013 – Today is World Blood Donor Day, a day to celebrate the generosity of all those who donate blood and to raise awareness of the need for blood donations. Individuals with thalassemia, many of whom require red blood cell transfusions on a regular basis, are aware of the importance of blood donation. […]
June 5, 2013 – Help the Cooley’s Anemia Foundation and the New York Mets hit one out of the field for those with thalassemia! On August 23, it’s Cooley’s Anemia Night at Citi Field in Queens, NY as the Amazin Mets take on the Detroit Tigers! In an effort to create awareness about Cooley’s anemia, […]