March 20, 2013 – If you’re a regular visitor to this site or to the CAF Facebook page, then you already know that Care Walk 2013 is happening on May 5. (Don’t know what Care Walk is? It’s our awesome annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the […]
March 14, 2013 – There’s one place to be on May 10: at the 2013 CAF Cigar Smoker at New York’s legendary Grand Havana Room. The Smoker starts at 6:00, but your evening starts as soon as you walk into the lobby of 666 Fifth Avenue, the building that houses the Grand Havana Room. The lobby […]
March 6, 2013 – Gargi Pahuja, a valued and respected leader in the thalassemia community who passed away last summer, will be honored as Volunteer of the Year by America’s Blood Centers at the organization’s Annual Awards of Excellence Banquet on March 18. Gargi, who was a long time member of the CAF Board, a […]
March 7, 2013 – Know when to hold ’em and when to fold ’em – or just like playing poker? Then get yourself out to the Long Island Chapter of CAF’s “Texas Hold ‘Em Poker Night” at Life Quality BMW in Brooklyn on Thursday, April 25. In addition to some mighty fine card playing, the […]
February 25, 2013 – The fact that the first U.S.-based gene therapy trial for thalassemia has started (click here for details) is fantastic. Some might think it’s unbelievable we’ve progressed to this point. Actually, it’s fantastic but not unbelievable. We have reached this point because many members of the thalassemia community have dedicated years of […]
February 22, 2013 – Funding for the National Institutes of Health (NIH) is in serious jeopardy. Without congressional action, NIH will receive a $1.6 billion cut when sequestration begins on Friday, March 1. It is critical that all Representatives and Senators hear from patients about the impact that inadequate funding has on the development of […]
The Cooley’s Anemia Foundation invites national and international applicants to apply for grants to facilitate clinical trials in Cell and Gene Therapy to advance a cure for thalassemia. The purpose of this initiative is to speed the application of recent translational advances in cell and gene therapy to clinical trials. Both phase I (safety) and […]
