Medical Research

At CAF, Medical Research is Key

Medical researchers who are interested in initiating a thalassemia-related project or who have an existing project that requires additional funding: The Cooley’s Anemia Foundation may be just what you need.

CAF has a decades-long history of supporting innovative and important research in thalassemia. Our established and respected Medical Fellowship program has funded numerous early career individuals who have continued to stay in the thalassemia field and make important contributions to the scientific and clinical study of thalassemia.

Our Support for Ongoing Clinical Research in Thalassemia Grants and Clinical Trials in Thalassemia Cell and Gene Therapy Grants are aggressively pushing forward the understanding of issues of concern to the growing thalassemia population and helping to propel advances in areas of primary importance.


CAF Accepting Applications for 2022 Medical Research Grants & Fellowships

November 3, 2021 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Support for Ongoing Clinical Research in Thalassemia Research Fellowships Clinical Trials in Thalassemia Cell and Gene Therapy Details are as follows: Support for Ongoing Clinical Research in […]

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Orchard Therapeutics Presents Positive Results from Gene Therapy Trial for Beta Thalassemia

May 1, 2019 – This past Monday at the American Society of Gene & Cell Therapy (ASGCT) Annual Meeting in Washington, D.C., Orchard Therapeutics presented positive results from its gene therapy trial for the treatment of beta thalassemia. During this study, nine transfusion-dependent beta thalassemia patents received OTL-300 gene therapy treatment, and all nine treated […]

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CAF Awards $227,500 Funding in Medical Research Fellowships

CAF is pleased to announce that five new Cooley’s Anemia Foundation Medical Research Fellowships and two renewal Fellowships have been awarded for the 2018-2019 grant cycle. The total amount of funding for the 7 research Fellowships is $227,500. These Fellowship recipients were assessed on the basis of the quality of the scientific content, the academic […]

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ApoPharma’s START Study Now Recruiting Participants

September 20, 2018 – The START study is examining the effects of giving early treatment of deferiprone to young children with beta thalassemia who have started receiving regular blood transfusions but have not yet reached the criteria for starting on iron chelation therapy. There are 2 trial sites in the US: Los Angeles and Philadelphia. Learn […]

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Sangamo Therapeutics and Bioverativ Therapeutics Begin New Clinical Trial for Transfusion-Dependent Beta-Thalassemia

April 6, 2018 – Sangamo Therapeutics and Bioverativ Therapeutics have begun a Phase 1/2 study of gene editing in patients with transfusion-dependent beta-thalassemia in the United States. This trial will investigate whether increasing the production of fetal hemoglobin can reduce or eliminate the need for blood transfusions. Participating patients will have their CD34+ blood stem cells […]

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CAF Interviews Dr. Tippi MacKenzie on First Ever Clinical Trial Involving In Utero Stem Cell Transplantation for Alpha-thalassemia Major (ATM)

October 19, 2017 –The University of California, San Francisco (UCSF) is currently recruiting participants for the first ever clinical trial performing in utero stem cell transplantations on fetuses affected with alpha-thalassemia major (ATM). CAF speaks with Dr. Tippi MacKenzie, a pediatric and fetal surgeon at UCSF Benioff Children’s Hospital who is leading this clinical trial […]

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CAF Awards $260,000 Funding in Medical Research Fellowships

July 10, 2017– CAF is pleased to announce that five new Cooley’s Anemia Foundation Medical Research Fellowships and three renewal Fellowships have been awarded for the 2017-2018 grant cycle. The total amount of funding for the 8 research Fellowships is $260,000. These Fellowship recipients were assessed on the basis of the quality of the scientific […]

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CAF Awards $202,500 Funding in Medical Research Fellowships

September 27, 2016- CAF is pleased to announce that four new Cooley’s Anemia Foundation Medical Research Fellowships and one renewal Fellowship have been awarded for the 2016-2017 grant cycle. In addition, this year we have awarded a new Clinical Research Grant to support ongoing clinical research in thalassemia. The total amount of funding for the […]

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10th Cooley’s Anemia Symposium a Resounding Success

October 28, 2015 – A packed house of 240 clinicians, scientists, nurses, industry, consumers and other participants attended the 10th Cooley’s Anemia Symposium in Rosemont, IL from October 18-22. This invaluable meeting, presented by the Cooley’s Anemia Foundation (CAF) and the New York Academy of Sciences(NYAS)  is an anticipated and milestone event held only every […]

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CAF Awards $195,000 Funding in Medical Research Fellowships

July 29, 2015 – Three new Cooley’s Anemia Foundation Medical Research Fellowships have been awarded for the 2015-2016 grant cycle. Combined with the three Fellowships which have been renewed from the previous cycle, the total amount of research funding for the current cycle comes to $195,000. The recipients were selected by members of the CAF […]

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