I want more information about Thalassemia
Thalassemia is the name of a group of genetic blood disorders. Click on the links below to find out more information about thalassemia
The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia. The major form of this genetic blood disease that most notably focused on is Cooley’s anemia/thalassemia major.
Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley’s anemia/thalassemia major.
- Basic Description of Thalassemia (This is a good place to start)
- Information about Thalassemia Trait
- Information About Beta Thalassemia Major
- Info About Beta Thalassemia Intermedia
- Information About Alpha Thalassemia
- Info About Hemoglobin H (a form of Alpha Thalassemia)
- Info About Hemoglobin E/E Beta Thalassemia
If you want to receive regular information from the Cooley’s Anemia Foundation about thalassemia and our story, register here
Since thalassemia is not a single disorder but a group of related disorders that affect the human body in similar ways, it is important to understand the differences between the various types of the disorder.
Although thalassemia can have a wide range of severity, all forms except thalassemia trait/minor are considered clinically significant. If you are an individual with a clinically significant form of thalassemia and require information, please contact our Patient Services Manager, Eileen Scott, at escott@thalassemia.org or (212) 279-8090 x 205.
The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s anemia/thalassemia major.
Every day we strive for longer and healthier lives for all patients with thalassemia until a universal cure is found.
Want to help us fight Thalassemia for thousands of patients diagnosed? Donate to CAF here!