Tag: Thalassaemia International Federation

2023-2024 Educational Incentive Award Program for Children of Individuals with Thalassemia

The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]

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Travel Guidance for Patients & Families with Thalassemia, Sickle Cell Disease & Rare Anemias

Travel Information for Thalassemia Patients

We are delighted to share with you TIF’s latest publication for patients living with thalassemia, sickle cell disease (SCD) and other rare anemias and their families entitled ‘Travel Guidance for Patients and Families’.

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CAF Board Exec Maria Hadjidemetriou Represents Thalassemia Community in Maybelline Campaign

CAF Board Exec Maria Hadjidemetriou stars in Maybelline's "We Speak" diversity campaign.

When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.

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TIF Position Statement on COVID-19 and Thalassemia Published in the European Journal of Hematology

June 25, 2020 – The Thalassaemia International Federation’s (TIF’s) position statement on COVID-19 and Thalassemia has just been published in the European Journal of Haematology. You can access the position statement here:  https://www.thalassemia.org/wp-content/uploads/2020/06/COVID-19-and-Thalassaemia-A-Position-Statement-of-the-Thalassaemia-Int….pdf The article notes that “The optimization of blood use will help safeguard blood supplies during the pandemic…One particular aspect of optimizing blood […]

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TIF Needs Volunteers for Survey on Gene Therapy

May 27, 2020 – The Thalassaemia International Federation (TIF) has developed a brief, 10-question survey to assess patients’ knowledge of and perspectives on Gene Therapy for Thalassemia. The survey is available in 6 languages (English, Hindi, Arabic, Italian, Greek and Turkish). For further information and to take the survey, please visit: https://thalassaemia.org.cy/news/surveys/gene-therapy-thalassaemia-version-2-3-a-tif-survey/

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TIF Shares Position Statement Urging Health Authorities to Identify Thalassemia/SCD Patients as High Risk of COVID-19

April 21, 2020 – TIF has created a Position Statement in which it encourages national health authorities worldwide to include patients with thalassemia and sickle cell disease in the group of patients considered high risk/vulnerable to COVID-19. It is hoped that such a request will lead to increased vigilance and prevention measures on behalf of […]

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TIF & EHA Host Webinar on Thalassemia/SCD & COVID-19

April 16, 2020 – TIF and the European Hematology Association (EHA) held a webinar today (Thursday, April 16) entitled ”Thalassaemia/SCD and COVID-19: Possible risks and a proposal for a patient pathway during the pandemic”. An expert panel from Italy and Cyprus which includes Dr. Maria D. Capellini, Dr. Raffaella Colombatti, and TIF Executive Director Dr. Androulla Eleftheriou, shared […]

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