The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]
We are delighted to share with you TIF’s latest publication for patients living with thalassemia, sickle cell disease (SCD) and other rare anemias and their families entitled ‘Travel Guidance for Patients and Families’.
When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.
October 18, 2021 – The 2021 TIF International Conference will be held online Nov. 19-21. Registration is free; for more information, go to: www.tifeducation.org
June 25, 2020 – The Thalassaemia International Federation’s (TIF’s) position statement on COVID-19 and Thalassemia has just been published in the European Journal of Haematology. You can access the position statement here: https://www.thalassemia.org/wp-content/uploads/2020/06/COVID-19-and-Thalassaemia-A-Position-Statement-of-the-Thalassaemia-Int….pdf The article notes that “The optimization of blood use will help safeguard blood supplies during the pandemic…One particular aspect of optimizing blood […]
May 27, 2020 – The Thalassaemia International Federation (TIF) has developed a brief, 10-question survey to assess patients’ knowledge of and perspectives on Gene Therapy for Thalassemia. The survey is available in 6 languages (English, Hindi, Arabic, Italian, Greek and Turkish). For further information and to take the survey, please visit: https://thalassaemia.org.cy/news/surveys/gene-therapy-thalassaemia-version-2-3-a-tif-survey/
April 21, 2020 – TIF has created a Position Statement in which it encourages national health authorities worldwide to include patients with thalassemia and sickle cell disease in the group of patients considered high risk/vulnerable to COVID-19. It is hoped that such a request will lead to increased vigilance and prevention measures on behalf of […]
April 16, 2020 – TIF and the European Hematology Association (EHA) held a webinar today (Thursday, April 16) entitled ”Thalassaemia/SCD and COVID-19: Possible risks and a proposal for a patient pathway during the pandemic”. An expert panel from Italy and Cyprus which includes Dr. Maria D. Capellini, Dr. Raffaella Colombatti, and TIF Executive Director Dr. Androulla Eleftheriou, shared […]
April 14, 2020 – The Thalassaemia International Federation (TIF) has developed this new brochure which provides a listing of many of the vaccines and therapeutic drugs that are currently in development for the treatment/prevention of COVID-19. Download the brochure below.
April 10, 2020 – TIF has prepared a publication on Blood and COVID-19 which we are sharing with the thalassemia community here in the U.S. We thank TIF for making this available to the community and the general public. Download the brochure below.
