info thalassemia

Thalassemia Care Walk Location Directory

Thalassemia Care Walk 2023 Locations

Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way! Care Walk is set up […]

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2023-2024 Educational Incentive Award Program for Children of Individuals with Thalassemia

The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]

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2023-2024 Thalassemia Patient Incentive Program Application

The Cooley’s Anemia Foundation sponsors incentive awards for thalassemia patients to further their education and career goals. These awards will be given in March, 2024. The purpose of these Incentive Awards is to inspire patients to further their education and career goals and to help them live positively with thalassemia. Requirements: Applicant must be diagnosed […]

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CAF Accepting Applications for 2024- 2025 Medical Research Grants & Fellowships

Fellowships & Grants in Thalassemia research

The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Clinical Trials in Thalassemia Cell & Gene Therapy Clinical Research Application Research Fellowship Application Details are as follows: CLINICAL TRIALS IN THALASSEMIA CELL AND GENE THERAPY The Cooley’s Anemia Foundation invites […]

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Travel Guidance for Patients & Families with Thalassemia, Sickle Cell Disease & Rare Anemias

Travel Information for Thalassemia Patients

We are delighted to share with you TIF’s latest publication for patients living with thalassemia, sickle cell disease (SCD) and other rare anemias and their families entitled ‘Travel Guidance for Patients and Families’.

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Health Maintenance for Thalassemia Patients aged 50 Years and Older

Health Maintenance Award for Thalassemia Patients 50 years and older

The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.

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Travel Support to Treatment Centers for Thalassemia Patients

Travel Support for Thalassemia Patients

The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.

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Presentations from 2019 CAF Patient-Family Conference

January 23, 2020 – CAF is pleased to share several of the presentations made at the 2019 CAF Patient-Family Conference, which took place from July 12-14 in San Francisco, CA. Click on the links below to download the presentations. Fetal Therapy for Alpha and Beta Thalassemia Major – Tippi Mackenzie, MD Issues in Health Insurance: […]

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Thalassemia Management Checklists Now Available for Download

May 31, 2018 – CAF is pleased to share three new thalassemia management checklists, which are available for download by clicking the links below. These Checklists were developed by Dr. Janet Kwiatkowski, Dr. Ashutosh Lal, and Dr. Sujit Sheth with editorial input from CAF as part of a grant project supported by the Health Resources […]

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The Man Behind the Name: Thomas Benton Cooley, M.D.

September 19, 2016 – People often ask why the major form of beta thalassemia is known as Cooley’s anemia. Beta thalassemia major is widely referred to as Cooley’s anemia in reference to Dr. Thomas Benton Cooley, the renowned researcher who discovered the disorder. Thomas Benton Cooley was an American physician specializing in pediatrics and hematology. […]

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