info thalassemia
Tuesday, September 19th, 2023

Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way! Care Walk is set up […]
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: about thalassemia, Care Walk, care walk 2023, Cooley's anemia, thalassemia, thalassemia awareness, thalassemia care, thalassemia cure, thalassemia fundraising, thalassemia major, what is thalassemia
Monday, September 18th, 2023

The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]
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: about thalassemia, CDC, Cooley's anemia, Thalassaemia International Federation, thalassemia, thalassemia care, thalassemia patients, what is thalassemia
Monday, September 18th, 2023

The Cooley’s Anemia Foundation sponsors incentive awards for thalassemia patients to further their education and career goals. These awards will be given in March, 2024. The purpose of these Incentive Awards is to inspire patients to further their education and career goals and to help them live positively with thalassemia. Requirements: Applicant must be diagnosed […]
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: CDC, Cooley's anemia, patient incentives, thalassemia, thalassemia care, thalassemia major, thalassemia patient, thalassemia patient care, thalassemia patients, what is thalassemia
Wednesday, August 30th, 2023

The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Clinical Trials in Thalassemia Cell & Gene Therapy Clinical Research Application Research Fellowship Application Details are as follows: CLINICAL TRIALS IN THALASSEMIA CELL AND GENE THERAPY The Cooley’s Anemia Foundation invites […]
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: clinical research, clinical trials, fellowships, gene therapy, grants, medicial research, thalassemia, thalassemia research
Thursday, July 20th, 2023

We are delighted to share with you TIF’s latest publication for patients living with thalassemia, sickle cell disease (SCD) and other rare anemias and their families entitled ‘Travel Guidance for Patients and Families’.
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: anemia, Cooley's anemia, rare anemia, sickle cell, Thalassaemia International Federation, thalassemia, TIF, travel guidance
Tuesday, June 27th, 2023

The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.
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: beta-thalassemia, Cooley's anemia, cooleys anemia foundation, health maintenance, patient care, patients, reimbursement, thalassemia, thalassemia care, thalassemia major, thalassemia patients
Monday, June 26th, 2023

The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.
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Thursday, January 23rd, 2020
January 23, 2020 – CAF is pleased to share several of the presentations made at the 2019 CAF Patient-Family Conference, which took place from July 12-14 in San Francisco, CA. Click on the links below to download the presentations. Fetal Therapy for Alpha and Beta Thalassemia Major – Tippi Mackenzie, MD Issues in Health Insurance: […]
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Thursday, May 31st, 2018

May 31, 2018 – CAF is pleased to share three new thalassemia management checklists, which are available for download by clicking the links below. These Checklists were developed by Dr. Janet Kwiatkowski, Dr. Ashutosh Lal, and Dr. Sujit Sheth with editorial input from CAF as part of a grant project supported by the Health Resources […]
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Tuesday, September 13th, 2016

September 19, 2016 – People often ask why the major form of beta thalassemia is known as Cooley’s anemia. Beta thalassemia major is widely referred to as Cooley’s anemia in reference to Dr. Thomas Benton Cooley, the renowned researcher who discovered the disorder. Thomas Benton Cooley was an American physician specializing in pediatrics and hematology. […]
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