Links
Links to Thalassemia-Related Information
Here are some links to thalassemia-related information that may be of interest.
Wednesday, October 9th, 2024
The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Clinical Trials in Thalassemia Cell & Gene Therapy Application Clinical Research Application Research Fellowship Application Details are as follows: Clinical Trials in Thalassemia Cell and Gene Therapy Application The Cooley’s Anemia […]
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: Front Page, info foundation, info thalassemia, Links, medical professional, Medical Research, News
: CDC, clinical trials, Cooley's anemia, fellowship applications, gene therapy, grant application, grants and fellowships, medical research, medical research applications, rare disease, rare disease reasearch, registration, thalassemia, thalassemia medical research
Monday, March 25th, 2024
Here are a list of Care Walk Locations! Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way, […]
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: Care Walk, Front Page, info foundation, info thalassemia, Links, News, person with thalassemia, Upcoming Events
: Care Walk, care walk 2024, Care Walk Spotlight, Cooley's anemia, fundraising, people with thalassemia, registration, Thal Pals, thalassemia, thalassemia awareness, thalassemia life, thalassemia patient, what is thalassemia
Tuesday, March 19th, 2024
The Cooley’s Anemia Foundation is pleased to announce that the 2024 Patient-Family Conference will be held from July 12-14 at the Renaissance Concourse Atlanta Airport Hotel. During registration, you will have the option to choose whether you would like to attend in person or virtually. If you choose to attend virtually, only the sessions on […]
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: Front Page, info thalassemia, Links, medical professional, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: Cooley's anemia, patient-family conference, people with thalassemia, registration, Thal Pals, thalassemia, thalassemia care, thalassemia community, thalassemia major, thalassemia patient, what is thalassemia
Tuesday, February 6th, 2024
Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Click here to register for Care Walk!! […]
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: Blog, Care Walk, Events, Front Page, info foundation, info thalassemia, Links, Medical Research, News, person with thalassemia, Upcoming Events
: beta-thalassemia, Care Walk, care walk 2024, Care Walk Spotlight, CDC, Cooley's anemia, fundraiser, medical research, pharma, registration, Thal Pals, thalassemia, thalassemia awareness, thalassemia care, thalassemia care walk, thalassemia cure, thalassemia fundraiser, thalassemia medical research, what is thalassemia
Wednesday, January 17th, 2024
The FDA has approved Vertex and CRISPR’s gene-editing therapy Casgevy to treat beta thalassemia. Casgevy becomes the first therapy for the rare blood disorder to use the innovative CRISPR gene-editing technology. Vertex Pharmaceuticals and CRISPR Therapeutics have scored an FDA approval for their gene-editing therapy Casgevy (exa-cel) to treat transfusion-dependent beta thalassemia (TDT). The approval […]
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: Blog, Front Page, info thalassemia, Links, Medical Research, News, person with thalassemia
: beta thalassemia cure, beta-thalassemia, casgevy, Cooley's anemia, CRISPR, gene editing, gene therapy, medical research, pharma, thalassemia, thalassemia cure, thalassemia treatment, vertex
Tuesday, September 19th, 2023
Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way! Care Walk is set up […]
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: Care Walk, Chicago Chapter, Donors, Front Page, have thalassemia trait, info foundation, info thalassemia, Links, Medical Research, News, person with thalassemia, Upcoming Events
: about thalassemia, Care Walk, care walk 2023, Cooley's anemia, thalassemia, thalassemia awareness, thalassemia care, thalassemia cure, thalassemia fundraising, thalassemia major, what is thalassemia
Monday, September 18th, 2023
The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]
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: Downloadable Publications, Front Page, info foundation, info thalassemia, Links, News, person with thalassemia
: about thalassemia, CDC, Cooley's anemia, Thalassaemia International Federation, thalassemia, thalassemia care, thalassemia patients, what is thalassemia
Monday, June 26th, 2023
The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.
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: Front Page, info thalassemia, Links, News, person with thalassemia
: Cooley's anemia, financial, patient care, patients, registration, thalassemia, thalassemia patients, travel insurance
Monday, October 8th, 2018
October 8, 2018 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia; Clinical Trials in Thalassemia Cell and Gene Therapy; and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH IN […]
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: Grants & Fellowships, Links, News
: application, Clinical Trials in Thalassemia Cell and Gene Therapy, Ongoing Clinical Research in Thalassemia, Research Fellowships