This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.
bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.
March 2, 2017- CAF launched our “Volunteer Spotlight” Series last year to highlight the stories of some of the many selfless volunteers who play a major role in making our work possible. We are truly grateful for all of the love and heart-felt effort each of our volunteers puts into organizing awareness events, blood drives […]
February 21, 2017- Lisa Falco Guidice is an active member of the CAF patient community, and we thank her for sharing her inspiring story. I am a proud Jersey girl, born in Summit and raised in Florham Park. After being diagnosed with thalassemia major at 6 months old, my mother did everything she could to […]
February 13, 2017 – The CAF Westchester-Rockland Chapter welcomes all to experience the annual “Night at the Races” benefit on April 1st, 2017. This fun-filled event features a buffet dinner, open bar and raffle prizes. Guests will bet on the video horse races throughout the evening. The event will begin at 7pm at the V.I,P, […]
January 11, 2017- The Cooley’s Anemia Foundation is pleased to announce that Janelle Trieu has been named recipient of the 2016 CAF-ApoPharma Distinguished Scholar Award. The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Janelle is currently […]
January 4, 2017- CAF Staten Island Chapter invites all to attend the Cosmic Bowling Night fundraiser on Saturday, February 4th at Rab’s Country Lanes from 9:30pm to 12am. Tickets are $30 per person and include shoe rental, bowling, pizza and soda. Prizes will be awarded to the top bowlers. Participants are encouraged to help raise […]
December 13, 2016- The CAF Suffolk Chapter welcomes all to join the 13th Annual Lunch and Indoor Putting Contest! This event will take place at Butterfield’s in Hauppauge, NY on January 30, 2017. The top three teams in the putting contest will walk away with cash prizes! The winning team will receive a $1,000 cash prize, […]
November 11, 2016 – Mark your calendars! The 14th International Conference on Thalasseamia & Haemoglobinopathies, as well as the 16th TIF International Conference for Patients & Parents, will take place in Germany sometime in October/November 2017. Exact dates to be announced. Who should attend: Patients and Patient/Parent Organizations Healthcare professionals/medical specialists Academics/researchers Policy-makers at national, […]
Save the Date: Cooley’s Anemia Foundation 4th Annual Gala Thursday, June 8, 2017 The Lighthouse at Chelsea Piers For more information, contact Darlene@suffolkcaf.com
