Blog
Welcome to the Cooley’s Anemia Foundation blog!
This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
Sunday, August 21st, 2022

When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.
Read more
:
Blog, Front Page, News, Patients in the News
: Board of Directors, Maria Hadjidemetriou, Maybelline, patient, patient profile, patient stories, Thalassaemia International Federation, thalassemia, TIF
Wednesday, August 17th, 2022

bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.
Read more
:
Blog, Front Page, Medical Research, News
: beta-thalassemia, bluebird bio, Clinical Trials in Thalassemia Cell and Gene Therapy, Cooley's anemia, fda, gene therapy, pharma, thalassemia, ZYNTEGLO
Thursday, March 2nd, 2017

March 2, 2017- CAF launched our “Volunteer Spotlight” Series last year to highlight the stories of some of the many selfless volunteers who play a major role in making our work possible. We are truly grateful for all of the love and heart-felt effort each of our volunteers puts into organizing awareness events, blood drives […]
Read more
:
Blog, News, Staten Island Chapter
: spotlight, Volunteer Spotlight
Tuesday, February 21st, 2017

February 21, 2017- Lisa Falco Guidice is an active member of the CAF patient community, and we thank her for sharing her inspiring story. I am a proud Jersey girl, born in Summit and raised in Florham Park. After being diagnosed with thalassemia major at 6 months old, my mother did everything she could to […]
Read more
:
Blog, Patients in the News
: #thrivingwiththal, Lisa Guidice, patient, patient profile
Monday, February 13th, 2017

February 13, 2017 – The CAF Westchester-Rockland Chapter welcomes all to experience the annual “Night at the Races” benefit on April 1st, 2017. This fun-filled event features a buffet dinner, open bar and raffle prizes. Guests will bet on the video horse races throughout the evening. The event will begin at 7pm at the V.I,P, […]
Read more
:
Blog, Events, News, Westchester-Rockland Chapter
Wednesday, January 11th, 2017
January 11, 2017- The Cooley’s Anemia Foundation is pleased to announce that Janelle Trieu has been named recipient of the 2016 CAF-ApoPharma Distinguished Scholar Award. The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Janelle is currently […]
Read more
:
Blog, News, Patients in the News
: pharma
Wednesday, January 4th, 2017
January 4, 2017- CAF Staten Island Chapter invites all to attend the Cosmic Bowling Night fundraiser on Saturday, February 4th at Rab’s Country Lanes from 9:30pm to 12am. Tickets are $30 per person and include shoe rental, bowling, pizza and soda. Prizes will be awarded to the top bowlers. Participants are encouraged to help raise […]
Read more
:
Blog, Events, News, Staten Island Chapter
Tuesday, December 13th, 2016

December 13, 2016- The CAF Suffolk Chapter welcomes all to join the 13th Annual Lunch and Indoor Putting Contest! This event will take place at Butterfield’s in Hauppauge, NY on January 30, 2017. The top three teams in the putting contest will walk away with cash prizes! The winning team will receive a $1,000 cash prize, […]
Read more
:
Blog, Events, News, Suffolk Chapter
Wednesday, November 30th, 2016
November 11, 2016 – Mark your calendars! The 14th International Conference on Thalasseamia & Haemoglobinopathies, as well as the 16th TIF International Conference for Patients & Parents, will take place in Germany sometime in October/November 2017. Exact dates to be announced. Who should attend: Patients and Patient/Parent Organizations Healthcare professionals/medical specialists Academics/researchers Policy-makers at national, […]
Read more
:
Blog, Events, medical professional, News
: Thalassaemia International Federation, TIF
Tuesday, October 25th, 2016
Save the Date: Cooley’s Anemia Foundation 4th Annual Gala Thursday, June 8, 2017 The Lighthouse at Chelsea Piers For more information, contact Darlene@suffolkcaf.com
Read more
:
Blog, Events, News, Suffolk Chapter