Tag: Cooley’s anemia
Tuesday, September 19th, 2023
Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way! Care Walk is set up […]
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: Care Walk, Chicago Chapter, Donors, Front Page, have thalassemia trait, info foundation, info thalassemia, Links, Medical Research, News, person with thalassemia, Upcoming Events
: about thalassemia, Care Walk, care walk 2023, Cooley's anemia, thalassemia, thalassemia awareness, thalassemia care, thalassemia cure, thalassemia fundraising, thalassemia major, what is thalassemia
Monday, September 18th, 2023
The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]
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: Downloadable Publications, Front Page, info foundation, info thalassemia, Links, News, person with thalassemia
: about thalassemia, CDC, Cooley's anemia, Thalassaemia International Federation, thalassemia, thalassemia care, thalassemia patients, what is thalassemia
Monday, September 18th, 2023
The Cooley’s Anemia Foundation sponsors incentive awards for thalassemia patients to further their education and career goals. These awards will be given in March, 2024. The purpose of these Incentive Awards is to inspire patients to further their education and career goals and to help them live positively with thalassemia. Requirements: Applicant must be diagnosed […]
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: Downloadable Publications, Front Page, info thalassemia, News, person with thalassemia
: CDC, Cooley's anemia, patient incentives, thalassemia, thalassemia care, thalassemia major, thalassemia patient, thalassemia patient care, thalassemia patients, what is thalassemia
Thursday, July 20th, 2023
We are delighted to share with you TIF’s latest publication for patients living with thalassemia, sickle cell disease (SCD) and other rare anemias and their families entitled ‘Travel Guidance for Patients and Families’.
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: Blog, Front Page, info thalassemia, News, person with thalassemia
: anemia, Cooley's anemia, rare anemia, sickle cell, Thalassaemia International Federation, thalassemia, TIF, travel guidance
Tuesday, June 27th, 2023
The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.
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: Front Page, info thalassemia, News, Patients in the News, person with thalassemia
: beta-thalassemia, Cooley's anemia, cooleys anemia foundation, health maintenance, patient care, patients, reimbursement, thalassemia, thalassemia care, thalassemia major, thalassemia patients
Monday, June 26th, 2023
The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.
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: Front Page, info thalassemia, Links, News, person with thalassemia
: Cooley's anemia, financial, patient care, patients, registration, thalassemia, thalassemia patients, travel insurance
Tuesday, February 28th, 2023
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
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: Blog, Front Page, News, person with thalassemia
: Agios, beta thalassemia major, biotech, Cooley's anemia, e beta thalassemia, patient advocacy, pharma, PKD, Red Cell Revolution, SCD, Thal Pals, thalassemia
Monday, November 14th, 2022
The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
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: Front Page, News
: CDC, checklist, clinical management, Cooley's anemia, doctor resources, medical provider, patient resources, resources, thalassemia, thalassemia toolkit, toolkit, treatment, webinar
Wednesday, August 17th, 2022
bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.
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: Blog, Front Page, Medical Research, News
: beta-thalassemia, bluebird bio, Clinical Trials in Thalassemia Cell and Gene Therapy, Cooley's anemia, fda, gene therapy, pharma, thalassemia, ZYNTEGLO
Thursday, August 4th, 2022
This week’s spotlight is all about Team Ficarra. Talk about longevity – the Ficarra family is one of the founders of the Cooley’s Anemia Foundation!
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: Care Walk, Events, Front Page
: Bob Ficarra, Care Walk Spotlight, Cooley's anemia, Marianne Ficarra, spotlight, Why I Care Walk
