Tag: Cooley’s anemia


FDA Approves bluebird bio’s ZYNTEGLO®, the First Gene Therapy for People with Transfusion-Dependent Beta-Thalassemia

zynteglo approved for beta-thalassemia

bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.

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Register Now for 2014 CAF Patient-Family Conference!

February 27, 2014 – Registration is now open for CAF’s 2014 Patient~Family Conference!  This amazing annual event will be held June 20-22 at the Intercontinental Chicago-O’Hare Hotel in Rosemont, Il. Entitled “Perspectives & Strategies for Thalassemia Care & Curative Options,” the Conference is a unique opportunity for any individual with thalssemia and their family members […]

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Staten Island Chapter Golf Outing Hits the Links May 7

February 25, 2014 – It may have been a rough winter, but the snow ought to be gone by May 7 – the date of the Staten Island chapter of CAF’s 10th annual Charity Golf Outing! This annual event has become one of the most anticipated for area golfers, whether dedicated enthusiasts or occasional links-walkers. […]

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CAF Posts New “Guide to Living with Thalassemia” for Download

September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here.  (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]

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School Toolkit for Thalassemia Now Available for Download

August 21, 2013 – If you or your child needs to talk with school personnel about your experience with thalassemia and how it may impact attendance or schoolwork, CAF has a new publication that can help: The School Toolkit for People with Transfusion-Dependent Thalassemia. Over the years, the Cooley’s Anemia Foundation has heard from some patients […]

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