person with thalassemia


Registration Now Open for 2021 CAF Patient-Family Conference (August 13-15)

May 13, 2021 – Registration is now open for the 2021 CAF Patient-Family Conference to be held August 13-15, 2021 in New Brunswick, NJ.  This conference will be a live, in-person event; in addition, the Saturday sessions will be available online for those who cannot attend in person.  We will be following all Covid-19 safety […]

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Save the Date: CAF Patient-Family Conference on August 13-25

April 15, 2020 – CAF is enormously pleased to announce that this year’s Patient-Family Conference will be available as both an in-person and online event this year and will be held from August 13-15. The in-person event will be held in New Brunswick, NJ. However, please note that the number of people who can attend […]

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Presentations from 2020 CAF Patient-Family Conference

December 11, 2020 – CAF is pleased to share several of the presentations made at the 2020 CAF Online Mini Conference for Patients and Families, which took place virtually on Saturday, July 11. Click on the links below to watch recordings of the presentations. Overview: Novel Therapies in Thalassemia Medical Issues Related to COVID-19 for […]

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CAF Patient-Family Conference Postponed Until July of 2021

April 1, 2020 – Due to the ongoing situation concerning COVID-19, the Cooley’s Anemia Foundation will be postponing the 2020 Patient-Family Conference in New Brunswick to July of 2021. We regret the necessity of taking this step; however, we feel that given the fluidity and unpredictability of the current situation, it is in the best […]

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CAF Accepting Applications for 2019-2020 Patient Incentive Awards Until Feb 14, 2020

November 4, 2019 – The Cooley’s Anemia Foundation is accepting applications for its 2019-2020 Patient Incentive Awards, as well as the 2019-2020 Educational Incentive Awards for Children of Individuals with Thalassemia. These awards are open to thalassemia patients, as well as children of thalassemia patients, who are U.S. residents and are currently pursuing education in a […]

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Camps for Children with Thalassemia

CAF periodically shares information about camps for children with serious medical conditions including thalassemia. This is provided for informational purposes so that parents/patients can know about possible options they may wish to consider. CAF does not endorse one camp over another. We recommend visiting the camp websites for more detailed information about the camp sessions, […]

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