June 3, 2013 – The Spring 2013 issue of Lifeline, CAF’s newsletter, is now available for downloading. You can download the issue by clicking here. (Adobe Reader is required.)
June 3, 2013 – The Spring 2013 issue of Lifeline, CAF’s newsletter, is now available for downloading. You can download the issue by clicking here. (Adobe Reader is required.)
May 14, 2013 – A big shout out to Gabriel Theophanous, President of the UK Thalassaemia Society, for competing in his second Virgin London Marathon – and for shaving 30 minutes off his past time! This is a tremendous achievement and demonstrates once again that advances in treatment are helping more people with thalassemia meet and […]
May 1, 2013 – The deadline for applying for one of the 2013 Sultan Bin Khalifa International Thalassemia Awards,established by H.H. Dr. Sheikh Sultan Bin Khalifa Al Nahyan in partnership with the Thalassaemia International Federation, is June 15. The Awards are intended to recognize outstanding contributions in thalassemia by medical professionals, researchers, patients, parents and organizations. […]
April 30, 2013 – The medical journal Pediatric Blood and Cancer published online on April 23 a study entitled “The Palatability and Tolerability of Deferasirox Taken With Different Beverages or Food.” This is known to many in the thalassemia community as “the Exjade food study;” as the official title suggests, it looks at the option […]
April 29, 2013 – As you already know (and you do know this, don’t you), May 5 is the official date for our annual Care Walk – a chance for people to show support for all those with thalassemia while raising funds to help CAF in the fight against thalassemia. But because we designed Care […]
April 22, 2013 – The 2013 Patient~Family Conference is coming (June 28-30) in Philadelphia. This is an incredible opportunity for thalassemia patients and family members to get together, hear a lot of important medical information, ask questions and have the chance to socialize. You really don’t want to miss it! We thought you might like […]
Save the date! The CAF 2014 Patient~Family Conference will be held the weekend of June 20-22 in Chicago. Check back here soon for more information.
Care Walk is set up to provide maximum flexibility for those who want to Walk. You can decide to do a personalCare Walk with just you and few friends or family members, or you can organize a larger Walk that’s open to the public. Below are some of the larger Walks that are being organized for this […]
April 12, 2013 – The Cooley’s Anemia Foundation is pleased to announce the receipt of an unrestricted educational grant in the amount of $100,000 from ApoPharma. This money will be used to support a range of CAF programs and services, including major sponsorship of the upcoming CAF 2013 Patient~Family Conference in Philadelphia on June 28-30. […]
April 11, 2013 – “I would like to encourage everyone to participate in the Care Walk in even the smallest fashion because you may not know the impact you could be making for future generations.” So says Chi Pham, who along with Faye Lam and several other DC area supporters is organizing this year’s “Team […]