Tag: CDC

Navdeep Singh Shares His Thalassemia Journey

October 27, 2021 – We invite you to read about Navdeep Singh’s journey with thalassemia at the following link: https://www.cdc.gov/ncbddd/thalassemia/stories.html. CAF thanks Navdeep for sharing his personal story with the thalassemia community and the CDC for helping people learn more about living with thalassemia.

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CDC Webinar on Cardiovascular Complications on Nov 18

October 26, 2021 – Dr. John Wood will be presenting a webinar on November 18 at 2:00 pm (Eastern)  entitled “The Heart in Thalassemia” from 2:00 – 3:00 PM ET. This webinar is part of the Centers for Disease Control and Prevention’s (CDC’s) Public Health Webinar Series on Blood Disorders. In this webinar, Dr. Wood will discuss the three most […]

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CAF Receives a Five-Year CDC Grant to Support Its Thalassemia Patient Outreach and Educational Initiatives

September 9, 2020 – The Cooley’s Anemia Foundation (CAF) has received a five-year Cooperative Agreement from the Centers for Disease Control and Prevention (CDC). This funding will be used to support patient outreach efforts, health messaging for the thalassemia patient/family community, and evidence-based training for thalassemia healthcare providers. The new Cooperative Agreement will go into […]

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CDC Indicates that Thalassemia Patients are at Higher Risk for Severe Illness from COVID-19

May 12, 2020 – The Centers for Disease Control and Prevention (CDC) has issued revised guidance indicating that people with Hemoglobin Disorders – including thalassemia and sickle cell disease – may be at higher risk for severe illness from COVID-19. They suggest that patients with thalassemia: (1) Ask their healthcare providers about telemedicine or remote […]

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CAF Celebrates International Thalassemia Day

May 8, 2020 – International Thalassemia Day is commemorated each May 8th in order to raise awareness about thalassemia. On this very special day for our community, we pause to remember our friends who are no longer with us. We also celebrate all patients who are trying to live their best lives while managing the […]

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