The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]
The Cooley’s Anemia Foundation sponsors incentive awards for thalassemia patients to further their education and career goals. These awards will be given in March, 2024. The purpose of these Incentive Awards is to inspire patients to further their education and career goals and to help them live positively with thalassemia. Requirements: Applicant must be diagnosed […]
The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
October 27, 2021 – We invite you to read about Navdeep Singh’s journey with thalassemia at the following link: https://www.cdc.gov/ncbddd/thalassemia/stories.html. CAF thanks Navdeep for sharing his personal story with the thalassemia community and the CDC for helping people learn more about living with thalassemia.
October 26, 2021 – Dr. John Wood will be presenting a webinar on November 18 at 2:00 pm (Eastern) entitled “The Heart in Thalassemia” from 2:00 – 3:00 PM ET. This webinar is part of the Centers for Disease Control and Prevention’s (CDC’s) Public Health Webinar Series on Blood Disorders. In this webinar, Dr. Wood will discuss the three most […]
October 8, 2020 – CAF and the Centers for Disease Control and Prevention (CDC) are excited to announce the launch of a new video series highlighting the story of Aaron Cheng, a physician in training who is living with thalassemia. In this series, Aaron shares his experiences growing up with thalassemia and provides tips for […]
October 7, 2020 – Dr. Farzana Sayani, the Director of the Penn Comprehensive Adult Thalassemia Program, will be presenting a webinar entitled “Evaluation and Management of Fertility in People with Thalassemia” on Thursday, November 5th from 2 PM-3 PM EST. This webinar is part of the Center for Disease Control and Prevention’s (CDC’s) Public Health […]
September 9, 2020 – The Cooley’s Anemia Foundation (CAF) has received a five-year Cooperative Agreement from the Centers for Disease Control and Prevention (CDC). This funding will be used to support patient outreach efforts, health messaging for the thalassemia patient/family community, and evidence-based training for thalassemia healthcare providers. The new Cooperative Agreement will go into […]
August 18, 2020 – Many parents of children with thalassemia are concerned about whether their child should attend school in person if they live in a district in which in person classes is an option. There is no one simple answer to this question. Many factors must be considered, including: whether the child lives in […]
June 22, 2020 – If you were unable to join us for last Thursday’s webinar entitled “Overview of Novel Thalassemia Treatments” by Dr. Sujit Sheth of the New York Presbyterian Hospital/Weill Cornell Medical Center, the archived webinar can now be accessed online at: https://www.cdc.gov/ncbddd/blooddisorders/webinar.html
