Tag: CDC

Thalassemia Care Walk 2024 – Information

Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Click here to register for Care Walk!! […]

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2023-2024 Educational Incentive Award Program for Children of Individuals with Thalassemia

The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be given in March, 2024 for students enrolled in the fall 2023 and/or spring 2024 semester(s). The total amount of funding for this program for the […]

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2023-2024 Thalassemia Patient Incentive Program Application

The Cooley’s Anemia Foundation sponsors incentive awards for thalassemia patients to further their education and career goals. These awards will be given in March, 2024. The purpose of these Incentive Awards is to inspire patients to further their education and career goals and to help them live positively with thalassemia. Requirements: Applicant must be diagnosed […]

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CDC Webinar on Cardiovascular Complications on Nov 18

October 26, 2021 – Dr. John Wood will be presenting a webinar on November 18 at 2:00 pm (Eastern)  entitled “The Heart in Thalassemia” from 2:00 – 3:00 PM ET. This webinar is part of the Centers for Disease Control and Prevention’s (CDC’s) Public Health Webinar Series on Blood Disorders. In this webinar, Dr. Wood will discuss the three most […]

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CDC Launches Video Series on Story of Aaron Cheng

October 8, 2020 – CAF and the Centers for Disease Control and Prevention (CDC) are excited to announce the launch of a new video series highlighting the story of Aaron Cheng, a physician in training who is living with thalassemia. In this series, Aaron shares his experiences growing up with thalassemia and provides tips for […]

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Register Now for the CDC’s Webinar on Fertility in People with Thalassemia (Thursday, November 5)

October 7, 2020 – Dr. Farzana Sayani, the Director of the Penn Comprehensive Adult Thalassemia Program, will be presenting a webinar entitled “Evaluation and Management of Fertility in People with Thalassemia” on Thursday, November 5th from 2 PM-3 PM EST. This webinar is part of the Center for Disease Control and Prevention’s (CDC’s) Public Health […]

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CAF Receives a Five-Year CDC Grant to Support Its Thalassemia Patient Outreach and Educational Initiatives

September 9, 2020 – The Cooley’s Anemia Foundation (CAF) has received a five-year Cooperative Agreement from the Centers for Disease Control and Prevention (CDC). This funding will be used to support patient outreach efforts, health messaging for the thalassemia patient/family community, and evidence-based training for thalassemia healthcare providers. The new Cooperative Agreement will go into […]

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