Tag: thalassemia awareness

Support for Travel to Treatment Centers for Thalassemia Patients

Support for Travel to Treatment Centers for Thalassemia Patients

The Cooley’s Anemia Foundation (CAF) is offering support for significant travel to treatment centers for thalassemia patients. CAF offers limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center. (Extraordinary thalassemia care shall […]

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Support for Health Maintenance in Thalassemia Patients

The Cooley’s Anemia Foundation is announcing support for health maintenance in thalassemia patients 50 years & older. We are recognizing the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older. What expenses […]

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CAF Awards $250,000 in Medical Research Fellowships for 2024-2025

We’re proud to announce five new Cooley’s Anemia Foundation Medical Research Fellowships for the 2024-2025 grant cycle. The total amount of funding for the research Fellowships is $250,000. These Fellowship recipients were assessed on the basis of the quality of the scientific content, the academic accomplishments and future promise of the investigator, the quality of […]

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Agios drug reduces blood transfusions in patients with beta-thalassemia (early press release)

*IMPORTANT: The following information is a press release that has been released in advance of the date being presented for peer review* Agios Pharmaceuticals announced Monday that its drug Pyrukynd (mitapivat), an oral pyruvate kinase activator, reached its primary endpoint in a Phase III trial evaluating adults with the blood disorder transfusion-dependent alpha- or beta-thalassemia. […]

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Care Walk 2024 Location Directory

Here are a list of Care Walk Locations! Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way, […]

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Thalassemia Care Walk 2024 – Information

Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Click here to register for Care Walk!! […]

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Thalassemia Care Walk Location Directory

Thalassemia Care Walk 2023 Locations

Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way! Care Walk is set up […]

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