The Cooley’s Anemia Foundation is pleased to announce that the 2024 Patient-Family Conference will be held from July 12-14 at the Renaissance Concourse Atlanta Airport Hotel. During registration, you will have the option to choose whether you would like to attend in person or virtually. If you choose to attend virtually, only the sessions on […]
Agios Announces Phase 3 ENERGIZE Study of Mitapivat Met Primary Endpoint and Both Key Secondary Endpoints in Adults with Non-Transfusion-Dependent Alpha- or Beta-Thalassemia January 3, 2024 – Agios Pharmaceuticals, Inc. today announced that the global Phase 3 ENERGIZE study of mitapivat in adults with non-transfusion-dependent (NTD) alpha- or beta-thalassemia achieved its primary endpoint of […]
We’re proud to announce two new Cooley’s Anemia Foundation Medical Research Fellowships and two renewal Medical Research Fellowships for the 2023-2024 grant cycle. The total amount of funding for the two research Fellowships is $200,000. These Fellowship recipients were assessed on the basis of the quality of the scientific content, the academic accomplishments and future […]
The Eleventh Cooley’s Anemia Symposium will bring together basic scientists, clinical investigators, and clinicians to review and discuss recent research for thalassemia syndromes.
November 2, 2020 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in two categories: (1) Support for Ongoing Clinical Research in Thalassemia, and (2) Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH IN THALASSEMIA The Cooley’s Anemia Foundation […]
September 16, 2019 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia; Clinical Trials in Thalassemia Cell and Gene Therapy; and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]
January 28, 2019 – CAF Medical Advisory Board Chair Janet Kwiatkowski, MD, MSCE, will be the featured expert on the CDC’s Thalassemia Management webinar on February 28 from 2pm-3pm. During this webinar, Dr. Kwiatkowski will provide an overview of current, recommended treatments for people with thalassemia, with an emphasis on transfusion-dependent thalassemia. She will discuss […]
October 11, 2017 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia; Clinical Trials in Thalassemia Cell and Gene Therapy; and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH IN […]
Checklist: Guidelines for Managing Transfusion Therapy for Thalassemia Cazzola, M., Borgna-Pignatti, C., Locatelli, F., Ponchio, L., Beguin, Y. & De Stefano, P. (1997) A moderate transfusion regimen may reduce iron loading in beta-thalassemia major without producing excessive expansion of erythropoiesis. Transfusion, 37, 135-140. Cazzola, M., De Stefano, P., Ponchio, L., Locatelli, F., Beguin, Y., Dessi, […]
January 30, 2017 – The Cooley’s Anemia Foundation is announcing a change in the Chairmanship of its Medical Advisory Board (MAB). Ellis Neufeld, MD, PhD, who has been Chair of the MAB since 2009, is stepping down as of March 1. Janet Kwiatkowski, MD, MSCE will be assuming the Chairmanship of this important Board. Dr. […]
