Tag: medical research

CAF Funds $375,000 in Important Thalassemia Research Areas

July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy?  Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart?  Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]

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Journal Publishes Exjade Food Study Results

April 30, 2013 – The medical journal Pediatric Blood and Cancer published online on April 23 a study entitled “The Palatability and Tolerability of Deferasirox Taken With Different Beverages or Food.” This is known to many in the thalassemia community as “the Exjade food study;” as the official title suggests, it looks at the option […]

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April 8 Rally for Medical Research

April 3, 2013  – Over 150 national organizations and institutions will hold a Rally for Medical Research in Washington, D.C.  on April 8.  at 11:00 a.m.The purpose of the Rally is to publicly express support for the National Institutes of Health (NIH) as a national priority and raise awareness among the general public about the […]

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Help Stop Funding Cuts to Medical Research

February 22, 2013 – Funding for the National Institutes of Health (NIH) is in serious jeopardy.  Without congressional action, NIH will receive a $1.6 billion cut when sequestration begins on Friday, March 1. It is critical that all Representatives and Senators hear from patients about the impact that inadequate funding has on the development of […]

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