Tag: medical research

Thalassemia Care Walk 2024 – Information

Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Click here to register for Care Walk!! […]

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FDA Approves Vertex & CRISPR’s Gene Editing Therapy to treat Beta Thalassemia

Treat Beta Thalassemia

The FDA has approved Vertex and CRISPR’s gene-editing therapy Casgevy to treat beta thalassemia. Casgevy becomes the first therapy for the rare blood disorder to use the innovative CRISPR gene-editing technology. Vertex Pharmaceuticals and CRISPR Therapeutics have scored an FDA approval for their gene-editing therapy Casgevy (exa-cel) to treat transfusion-dependent beta thalassemia (TDT). The approval […]

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CAF Awards $200,000 in Medical Research Fellowships

We’re proud to announce two new Cooley’s Anemia Foundation Medical Research Fellowships and two renewal Medical Research Fellowships for the 2023-2024 grant cycle. The total amount of funding for the two research Fellowships is $200,000. These Fellowship recipients were assessed on the basis of the quality of the scientific content, the academic accomplishments and future […]

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CAF Funds $375,000 in Important Thalassemia Research Areas

July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy? Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart? Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]

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Journal Publishes Exjade Food Study Results

April 30, 2013 – The medical journal Pediatric Blood and Cancer published online on April 23 a study entitled “The Palatability and Tolerability of Deferasirox Taken With Different Beverages or Food.” This is known to many in the thalassemia community as “the Exjade food study;” as the official title suggests, it looks at the option […]

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April 8 Rally for Medical Research

April 3, 2013 – Over 150 national organizations and institutions will hold a Rally for Medical Research in Washington, D.C. on April 8. at 11:00 a.m.The purpose of the Rally is to publicly express support for the National Institutes of Health (NIH) as a national priority and raise awareness among the general public about the […]

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Help Stop Funding Cuts to Medical Research

February 22, 2013 – Funding for the National Institutes of Health (NIH) is in serious jeopardy. Without congressional action, NIH will receive a $1.6 billion cut when sequestration begins on Friday, March 1. It is critical that all Representatives and Senators hear from patients about the impact that inadequate funding has on the development of […]

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