Here are a list of Care Walk Locations! Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way, […]
The Cooley’s Anemia Foundation is pleased to announce that the 2024 Patient-Family Conference will be held from July 12-14 at the Renaissance Concourse Atlanta Airport Hotel. During registration, you will have the option to choose whether you would like to attend in person or virtually. If you choose to attend virtually, only the sessions on […]
Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Click here to register for Care Walk!! […]
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
November 24, 2009 – Vikram holds a special Thanksgiving party. Happy Thanksgiving from the Cooley’s Anemia Foundation! With this episode of Thal Pals, our year-long online comic strip comes to an end. If you’ve enjoyed the comic and would like to see new episodes, write c.butler@cooleysanemia.org and let us know. {pollxtbot id=3} […]
November 5, 2009 – Vikram’s cousin comes for his first comprehensive care evaluation. Next episode will be posted on 11/23/09. Want More Information About Thalassemia Treatment Centers? Click here to download a pdf brochure and learn about this team approach to thalassemia. What’s Involved in a Comprehensive Care Evaluation? Click here to […]
October 12, 2009 – Perry wants to give blood for his friend Vikram. Next episode will be posted on 11/05/09. Quick Blood Facts * Someone in the U.S. requires a life-saving transfusion every 3 seconds. * Each donation of blood can help save 3 lives. * 60% of Americans are eligible to donate blood, […]
September 28, 2009 – Helena tells Thuc about CAF’s Patient Incentive Awards. Next episode will be posted on 010/12/09. What Are CAF Patient Incentive Awards? DID YOU KNOW…? CAF’s advocacy efforts resulted in the establishment of the Thalassemia Clinical Research Network (TCRN). 2009-2010 Patient Incentive Awards are available to thalassemia patients currently enrolled in […]
September 14, 2009 – Thuc and Vikram talk about thalassemia and pain. Want to Learn More About the Assessment of Pain in Thalassemia Study? Vikram and Thuc are discussing an actual study to look into the issue of pain in thalassemia. You can learn more about the study by clicking here! Next episode […]
August 31, 2009 – Ron and Tina garden while discussing Lifelines in thalassemia. Download some “Quick Tips” about lifelines by clicking here. Next episode will be posted on 09/14/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. […]
