Tag: Thal Pals
Tuesday, July 30th, 2024
The Cooley’s Anemia Foundation (CAF) is offering support for significant travel to treatment centers for thalassemia patients. CAF offers limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center. (Extraordinary thalassemia care shall […]
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: Front Page, info thalassemia, News, person with thalassemia
: Cooley's anemia, medical, medicla, Thal Pals, thalassemia, thalassemia awareness, thalassemia cure, thalassemia treatment, treatment center
Tuesday, July 30th, 2024
The Cooley’s Anemia Foundation is announcing support for health maintenance in thalassemia patients 50 years & older. We are recognizing the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older. What expenses […]
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: Front Page, info foundation, info thalassemia, News, person with thalassemia
: Cooley's anemia, health maintenance, patient incentives, Thal Pals, thalassemia, thalassemia awareness, thalassemia patient
Thursday, June 20th, 2024
*IMPORTANT: The following information is a press release that has been released in advance of the date being presented for peer review* Agios Pharmaceuticals announced Monday that its drug Pyrukynd (mitapivat), an oral pyruvate kinase activator, reached its primary endpoint in a Phase III trial evaluating adults with the blood disorder transfusion-dependent alpha- or beta-thalassemia. […]
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: Blog, Front Page, info thalassemia, Medical Research, News
: Agios, blood disorder, blood transfusion, Cooley's anemia, pharma, Thal Pals, Thalassaemia International Federation, thalassemia, thalassemia awareness, TIF
Monday, March 25th, 2024
Here are a list of Care Walk Locations! Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Your Walk, Your Way, […]
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: Care Walk, Front Page, info foundation, info thalassemia, Links, News, person with thalassemia, Upcoming Events
: Care Walk, care walk 2024, Care Walk Spotlight, Cooley's anemia, fundraising, people with thalassemia, registration, Thal Pals, thalassemia, thalassemia awareness, thalassemia life, thalassemia patient, what is thalassemia
Tuesday, March 19th, 2024
The Cooley’s Anemia Foundation is pleased to announce that the 2024 Patient-Family Conference will be held from July 12-14 at the Renaissance Concourse Atlanta Airport Hotel. During registration, you will have the option to choose whether you would like to attend in person or virtually. If you choose to attend virtually, only the sessions on […]
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: Front Page, info thalassemia, Links, medical professional, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: Cooley's anemia, patient-family conference, people with thalassemia, registration, Thal Pals, thalassemia, thalassemia care, thalassemia community, thalassemia major, thalassemia patient, what is thalassemia
Tuesday, February 6th, 2024
Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Funds raised support medical research to fight thalassemia, a genetic blood disorder, as well as patient support services for thalassemia patients across the country. Click here to register for Care Walk!! […]
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: Blog, Care Walk, Events, Front Page, info foundation, info thalassemia, Links, Medical Research, News, person with thalassemia, Upcoming Events
: beta-thalassemia, Care Walk, care walk 2024, Care Walk Spotlight, CDC, Cooley's anemia, fundraiser, medical research, pharma, registration, Thal Pals, thalassemia, thalassemia awareness, thalassemia care, thalassemia care walk, thalassemia cure, thalassemia fundraiser, thalassemia medical research, what is thalassemia
Tuesday, February 28th, 2023
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
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: Blog, Front Page, News, person with thalassemia
: Agios, beta thalassemia major, biotech, Cooley's anemia, e beta thalassemia, patient advocacy, pharma, PKD, Red Cell Revolution, SCD, Thal Pals, thalassemia
Tuesday, November 24th, 2009
November 24, 2009 – Vikram holds a special Thanksgiving party. Happy Thanksgiving from the Cooley’s Anemia Foundation! With this episode of Thal Pals, our year-long online comic strip comes to an end. If you’ve enjoyed the comic and would like to see new episodes, write c.butler@cooleysanemia.org and let us know. {pollxtbot id=3} […]
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: comic strip, Thal Pals
Thursday, November 5th, 2009
November 5, 2009 – Vikram’s cousin comes for his first comprehensive care evaluation. Next episode will be posted on 11/23/09. Want More Information About Thalassemia Treatment Centers? Click here to download a pdf brochure and learn about this team approach to thalassemia. What’s Involved in a Comprehensive Care Evaluation? Click here to […]
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: News
: comic strip, Thal Pals
Tuesday, October 13th, 2009
October 12, 2009 – Perry wants to give blood for his friend Vikram. Next episode will be posted on 11/05/09. Quick Blood Facts * Someone in the U.S. requires a life-saving transfusion every 3 seconds. * Each donation of blood can help save 3 lives. * 60% of Americans are eligible to donate blood, […]
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: News
: comic strip, Thal Pals