November 8, 2019 – CAF’s next Patient-Family Conference will take place from July 10-12, 2020 in New Brunswick, NJ. Additional details will follow. To receive additional information as it becomes available, send an email to sgilbert@thalassemia.org.
November 8, 2019 – CAF’s next Patient-Family Conference will take place from July 10-12, 2020 in New Brunswick, NJ. Additional details will follow. To receive additional information as it becomes available, send an email to sgilbert@thalassemia.org.
January 23, 2020 – CAF is pleased to share several of the presentations made at the 2019 CAF Patient-Family Conference, which took place from July 12-14 in San Francisco, CA. Click on the links below to download the presentations. Fetal Therapy for Alpha and Beta Thalassemia Major – Tippi Mackenzie, MD Issues in Health Insurance: […]
November 20, 2019 – CRISPR Therapeutics and Vertex are conducting a Phase 1/2 study of gene editing in patients with transfusion-dependent beta-thalassemia. This trial will investigate whether increasing the production of fetal hemoglobin through gene editing can reduce or eliminate the need for blood transfusions. It will also investigate the safety of this treatment. Participating […]
November 4, 2019 – The Cooley’s Anemia Foundation is accepting applications for its 2019-2020 Patient Incentive Awards, as well as the 2019-2020 Educational Incentive Awards for Children of Individuals with Thalassemia. These awards are open to thalassemia patients, as well as children of thalassemia patients, who are U.S. residents and are currently pursuing education in a […]
CAF periodically shares information about camps for children with serious medical conditions including thalassemia. This is provided for informational purposes so that parents/patients can know about possible options they may wish to consider. CAF does not endorse one camp over another. We recommend visiting the camp websites for more detailed information about the camp sessions, […]
June 12, 2019 – CAF is extending cut-off of registration for the Patient-Family Conference from midnight (Eastern time) on Wed., June 12 to midnight (Eastern) on Friday, June 14. We have also arranged for an extension of registering a hotel room under our special rate. If you plan to attend the Conference (whether staying at […]
March 4, 2019 – Registration for the 2019 CAF Patient-Family Conference is now open. The Conference will take place from July 12-14 in San Francisco, CA. Please note that the agenda is not ready, but those who are interested on registering for the Conference and their hotel rooms may do so now. Visit the following […]
February 4, 2019 – Tariq Ahmad, M.D., F.A.A.P., is an expert in pediatric endocrinology – which includes hormone disorders involving the thyroid, pituitary, adrenal gland, and skeleton. He also manages problems with growth and pubertal development as well as conditions related to diabetes. Dr. Ahmad attended Cornell University for his undergraduate studies, New York Medical […]
November 26, 2018 – The Cooley’s Anemia Foundation (CAF) is thrilled to announce a brand new initiative – the “Push-Ups to Fight Thalassemia Challenge.” Thanksgiving is over, but further feast-filled holidays are still ahead. The end of the year brings about wonderful opportunities to spend time with loved ones and friends – but all that […]
September 19, 2018 – Save the Date! The CAF Patient-Family Conference will take place from July 12-14, 2019 in San Francisco, CA. Details to come. Click here to download Save the Date announcement.