This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
November 11, 2016 – Mark your calendars! The 14th International Conference on Thalasseamia & Haemoglobinopathies, as well as the 16th TIF International Conference for Patients & Parents, will take place in Germany sometime in October/November 2017. Exact dates to be announced. Who should attend: Patients and Patient/Parent Organizations Healthcare professionals/medical specialists Academics/researchers Policy-makers at national, […]
Save the Date: Cooley’s Anemia Foundation 4th Annual Gala Thursday, June 8, 2017 The Lighthouse at Chelsea Piers For more information, contact Darlene@suffolkcaf.com
October 4, 2016 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia; Clinical Trials in Thalassemia Cell and Gene Therapy; and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]
September 28, 2016- CAF Staten Island Chapter is thrilled to invite all to attend the “At the Hop” swing dance fundraiser on Sunday, October 23 at the Staten Island Hilton Garden Inn from 12pm-4pm. This event features live music from The Dreamers Swing Band, a cash bar, and a dance floor to show off your swingin’ moves! […]
September 27, 2016- CAF is pleased to announce that four new Cooley’s Anemia Foundation Medical Research Fellowships and one renewal Fellowship have been awarded for the 2016-2017 grant cycle. In addition, this year we have awarded a new Clinical Research Grant to support ongoing clinical research in thalassemia. The total amount of funding for the […]
September 21, 2016 – In honor of World Gratitude Day, CAF is pleased to launch our “Volunteer Spotlight” series to highlight the stories of some the many selfless volunteers who play a major role in making our work possible. We are truly grateful for all of the love and heart-felt effort each of our volunteers […]
September 15, 2016- CAF welcomes all to join our Suffolk Chapter for the Pace’s Stakes Benefit for CFK and Cooley’s Anemia. This event will take place at Pace’s Steakhouse on the evening of November 15, 2016. The event features a cocktail hour complete with lobster, shrimp, clams, oysters, a pasta station and an open bar. Steak with […]
September 19, 2016 – People often ask why the major form of beta thalassemia is known as Cooley’s anemia. Beta thalassemia major is widely referred to as Cooley’s anemia in reference to Dr. Thomas Benton Cooley, the renowned researcher who discovered the disorder. Thomas Benton Cooley was an American physician specializing in pediatrics and hematology. […]
August 29, 2016 – This year’s Patient-Family Conference was a notable success, with much valuable information presented over the course of the two days. CAF is pleased to make available in pdf form some of the information presented at the Conference. In order to download the pdfs, click on the title of each presentation (below). Nutrition for […]
August 4, 2016 – The Cooley’s Anemia Foundation recommends that individuals with thalassemia who intend on traveling internationally inform their doctor about travel plans. With careful planning, your doctor can create a transfusion schedule that will help you avoid emergencies during your trip. Don’t forget that this careful planning should include the transfusion upon your […]
