Welcome to the Cooley’s Anemia Foundation blog!

This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community. 

North Salem Lions Golf Outing to Benefit CAF

July 14th, 2016- CAF is proud to announce the North Salem Lions 49th Anniversary & Golf Outing, which will take place on August 29th, 2016. The North Salem Lions Club will be generously donating proceeds from the outing to CAF as well as to Services for the Blind and Visually Impaired (VISIONS). The golf outing will […]

Read more

Patient Applications Being Accepted for 2016 CAF-ApoPharma Distinguished Scholar Award

July 10, 2016 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2016 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established in 2014, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with […]

Read more

Thriving With Thal Week

June 27, 2016 – We are proud to recognize this last week of June as Thriving With Thal week, when we celebrate the tenacity of thalassemia patients around the world. While living with thalassemia comes with many challenges, patients find ways to thrive every day. Join us on Facebook, Twitter, or Instagram by tagging a […]

Read more

Phase 3 Trial of Luspatercept Begins in U.S.

May 6, 2016 – Celgene in partnership with Acceleron is currently conducting a Phase 3 study of the protein luspatercept in beta-thalassemia called The BELIEVE Study. Previous studies indicate that luspatercept helps increase the production of mature red blood cells. In a Phase 2 study of adult patients with beta-thalassemia, luspatercept was shown to increase hemoglobin levels and to decrease […]

Read more

CDC Raises Awareness for International Thalassemia Day

May 6, 2016 – In honor of International Thalassemia Day (May 8), the Centers for Disease Control and Prevention (CDC) has posted information about thalassemia on their website and a new profile of a thalassemia patient on their Flickr album. You can view the CDC page by clicking here and the new profile of Yanyi […]

Read more

Staten Island Golf Outing is a Hole in One

May 5, 2016 – The Staten Island chapter of CAF held its annual golf outing on May 4 and the event was a definite hole-in-one. More than 130 people attended this wonderful day on the links at the South Shore Golf Club. The weather was cloudy, but spirits were sunny and shiny and a splendid […]

Read more

Secured By miniOrange