This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
July 14th, 2016- CAF is proud to announce the North Salem Lions 49th Anniversary & Golf Outing, which will take place on August 29th, 2016. The North Salem Lions Club will be generously donating proceeds from the outing to CAF as well as to Services for the Blind and Visually Impaired (VISIONS). The golf outing will […]
July 10, 2016 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2016 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established in 2014, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with […]
July 6, 2016 – CAF is thrilled to announce that we are one of the beneficiaries of the Milana Family Foundation’s upcoming Golf Outing and Poker Tournament. In addition to golf and poker, this event also features both a 50/50 raffle and a raffle for tickets to the red-hot Broadway musical “Hamilton.” The 1st Annual […]
June 29, 2016- Daniella Macolino is a 24 year old actress who pursues her dreams each day while living, and thriving, with thalassemia major. CAF thanks Daniella for allowing us to share her inspiring story. When I was four months old, my family and I were on vacation in Vermont when my mom noticed I […]
June 27, 2016 – We are proud to recognize this last week of June as Thriving With Thal week, when we celebrate the tenacity of thalassemia patients around the world. While living with thalassemia comes with many challenges, patients find ways to thrive every day. Join us on Facebook, Twitter, or Instagram by tagging a […]
May 9, 2016 – Yasmeen Anis, a person with thalassemia, shares her personal story below. CAF thanks Yasmeen for letting us share this story with you. NEGU – Never Ever Give Up – is something Yasmeen’s best friend told her one day, and it’s a motto that she’s kept since that day. Diagnosed with beta […]
May 6, 2016 – Celgene in partnership with Acceleron is currently conducting a Phase 3 study of the protein luspatercept in beta-thalassemia called The BELIEVE Study. Previous studies indicate that luspatercept helps increase the production of mature red blood cells. In a Phase 2 study of adult patients with beta-thalassemia, luspatercept was shown to increase hemoglobin levels and to decrease […]
May 6, 2016 – In honor of International Thalassemia Day (May 8), the Centers for Disease Control and Prevention (CDC) has posted information about thalassemia on their website and a new profile of a thalassemia patient on their Flickr album. You can view the CDC page by clicking here and the new profile of Yanyi […]
May 5, 2016 – The Staten Island chapter of CAF held its annual golf outing on May 4 and the event was a definite hole-in-one. More than 130 people attended this wonderful day on the links at the South Shore Golf Club. The weather was cloudy, but spirits were sunny and shiny and a splendid […]
