Tag: thalassemia
Tuesday, June 27th, 2023
The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.
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: Front Page, info thalassemia, News, Patients in the News, person with thalassemia
: beta-thalassemia, Cooley's anemia, cooleys anemia foundation, health maintenance, patient care, patients, reimbursement, thalassemia, thalassemia care, thalassemia major, thalassemia patients
Monday, June 26th, 2023
The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.
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: Front Page, info thalassemia, Links, News, person with thalassemia
: Cooley's anemia, financial, patient care, patients, registration, thalassemia, thalassemia patients, travel insurance
Tuesday, June 20th, 2023
We’re proud to announce two new Cooley’s Anemia Foundation Medical Research Fellowships and two renewal Medical Research Fellowships for the 2023-2024 grant cycle. The total amount of funding for the two research Fellowships is $200,000. These Fellowship recipients were assessed on the basis of the quality of the scientific content, the academic accomplishments and future […]
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: Grants & Fellowships, medical professional, Medical Research
: doctors, fellowships, grants, medical, medical research, patients, research, thalassemia
Tuesday, February 28th, 2023
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
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: Blog, Front Page, News, person with thalassemia
: Agios, beta thalassemia major, biotech, Cooley's anemia, e beta thalassemia, patient advocacy, pharma, PKD, Red Cell Revolution, SCD, Thal Pals, thalassemia
Friday, February 10th, 2023
The Cooley’s Anemia Foundation’s Westchester-Rockland Chapter welcomes all to experience its 25th annual “Night at the Races” benefit on April 1, 2023.
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: Blog, Events, Front Page, News, Upcoming Events, Westchester-Rockland Chapter
: Cooley's anemia, events, fundraiser, Night at the Races, rockland, rockland county, thalassemia, westchester, westchester-rockland chapter
Monday, November 14th, 2022
The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
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: Front Page, News
: CDC, checklist, clinical management, Cooley's anemia, doctor resources, medical provider, patient resources, resources, thalassemia, thalassemia toolkit, toolkit, treatment, webinar
Wednesday, October 12th, 2022
Did you know high levels of social support are linked to improved health outcomes in people with chronic health conditions? Join a virtual support group today!
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: Front Page, News
: mental health, social support, thalassemia, virtual groups
Friday, October 7th, 2022
Are you or a loved one considering gene therapy as a treatment option for transfusion dependent beta thalassemia? Watch the recording of the Gene Therapy Webinar featuring Dr. Sujit Sheth and reps from bluebird bio now!
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: Front Page, News, Webinars
: beta-thalassemia, bluebirdbio, gene therapy, pharma, Sujit Sheth, TDT, thalassemia, treatment, webinar, ZYNTEGLO
Sunday, August 21st, 2022
When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.
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: Blog, Front Page, News, Patients in the News
: Board of Directors, Maria Hadjidemetriou, Maybelline, patient, patient profile, patient stories, Thalassaemia International Federation, thalassemia, TIF
Wednesday, August 17th, 2022
bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.
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: Blog, Front Page, Medical Research, News
: beta-thalassemia, bluebird bio, Clinical Trials in Thalassemia Cell and Gene Therapy, Cooley's anemia, fda, gene therapy, pharma, thalassemia, ZYNTEGLO