I am a person with thalassemia

Welcome to the Cooley’s Anemia Foundation website!  The Cooley’s Anemia Foundation  exists to help individuals with thalassemia meet the challenges that are associated with living with this blood disorder.  (You can read about our mission and purpose by clicking here.)

Below are some links that may be of interest to individuals with thalassemia.

About Thalassemia

Clinical Trials in Thalassemia

Blood Safety

Thalassemia Treatment Centers

Downloadable Publications

News items of interest

Aaron Cheng Selected for 2015 CAF-ApoPharma Distinguished Scholar Award

January 5, 2016- The Cooley’s Anemia Foundation is pleased to announce that Aaron Cheng has been named recipient of the 2015 CAF-ApoPharma Distinguished Scholar Award.  The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Aaron is currently […]

Nutrition 1: Three Simple Suggestions for a Healthy Diet

December 16, 2015 – In the article below, Ellen Fung, PhD, RD of UCSF Benioff Children’s Hospital Oakland and Farah Sultan, RD of McMaster University, share some nutritional information for people with thalassemia. One of the most common questions we are asked as nutritionists is, “What should I be eating?” In many ways, the diet for […]

Interview: Dr. Maria Domenica Cappellini on Clinical Features of Thalassemia

  Dr. Maria Domenica Cappellini presented at the 10th Cooley’s Anemia Symposium on “Clinical Features of Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia […]

Hematology Meeting Presents Information of Interest for Thalassemia

December 9, 2015 – The American Society of Hematology (ASH) held its annual meeting from Dec. 4 – 8 in Orlando, FL, and CAF was once again there to distribute information, meet with clinicians and researchers and attend educational and scientific meetings of relevance to the thalassemia community. Below is information on a few of […]

Interview: Ellen Fung on Nutrition and Thalassemia

Dr. Ellen Fung presented at the 10th Cooley’s Anemia Symposium on “Nutrition for Patients with Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia field […]

Interview: Vip Viprakasit on NTDT

  Dr. Vip Viprakasit presented at the 10th Cooley’s Anemia Symposium on “When to Transfuse in Patients with Non-transfusion-dependent Thalassemia.” CAF spoke with him at the Symposium about this topic; his interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital […]

Join CAF in Making Giving Tuesday a Day to Remember

December 1, 2015 – Today is Giving Tuesday, the online community’s annual day for making charitable donations to causes that inspire and move us to make a difference – like the Cooley’s Anemia Foundation.  We hope that  today you will let people you know and love know that CAF matters to you. Several members of […]

Save the Date! 2016 Patient-Family Conference is July 8-10, 2016

November 24, 2015

Cooley’s Anemia Advocacy Forum Update: November 2015

November 4, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community.  (A brochure about CAAF can be downloaded by clicking here.)  Following is a report from Lyle Dennis […]

10th Cooley’s Anemia Symposium a Resounding Success

October 28, 2015 – A packed house of 240 clinicians, scientists, nurses, industry, consumers and other participants attended the 10th Cooley’s Anemia Symposium in Rosemont, IL from October 18-22. This invaluable meeting, presented by the Cooley’s Anemia Foundation (CAF) and the New York Academy of Sciences(NYAS)  is an anticipated and milestone event held only every […]