I am a person with thalassemia

Welcome to the Cooley’s Anemia Foundation website!  The Cooley’s Anemia Foundation  exists to help individuals with thalassemia meet the challenges that are associated with living with this blood disorder.  (You can read about our mission and purpose by clicking here.)

Below are some links that may be of interest to individuals with thalassemia.

About Thalassemia

Clinical Trials in Thalassemia

Blood Safety

Thalassemia Treatment Centers

Downloadable Publications

News items of interest

Agenda for Patient Conference is Available

April 21, 2015 – The agenda for CAF’s 2015 Patient-Family Conference is available and can be downloaded by clicking here. For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for […]

Novartis Announces Approval of Jadenu

April 1, 2015 – Novartis announced that the Food and Drug Administration (FDA) has approved Jadenu (deferasirox) tablets for the treatment of chronic iron overload due to blood transfusions in patients  2 years and older, and for chronic iron overload in non-transfusion-dependent thalassemia syndromes (NTDT) in patients 10 years and older. Jadenu is a new […]

2015 Patient-Family Conference Celebrates Self-Empowerment

March 27, 2015 – Registration is now open for CAF’s 2015 Patient~Family Conference!  For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for U.S. individuals with thalssemia and their family […]

“A Wonderful Journey” – Tracy Antonelli Talks About Adopting Children with Thalassemia

February 24, 2015 – Tracy Antonelli, an individual with thalassemia, and her husband have adopted three children from China over the past several years. Like Tracy, her adorable daughters have thalassemia. Below, CAF talks with Tracy about her experiences in going through the process of adopting children from another country. CAF:  Tell us a little […]

“Stronger Than We Think” – Joelle Zarcone on Running a Half Marathon

February 23, 2015 – On March 8, Joelle Zarcone will be running in the San Diego Half Marathon to raise money for CAF. Below, CAF talks with Joelle, a person with thalassemia, about her decision to participate in this endurance event.  CAF: How did you decide to participate in the San Diego Half Marathon? Joelle: […]

TIF Announces Photography Contest

February 2, 2015 – Thalassaemia International Federation (TIF has announced its 2nd International Photography Contest 2015, which is launched with the aim of creating awareness about thalassemia, in the context of the International Thalassemia Day  (May 8). Participation in this contest is open for all ages, and all countries across the world. Deadline The deadline for the competition […]

Registration for 2015 Care Walk Is Open

January 27, 2015 – Registration for the Cooley’s Anemia Foundation’s 2015 Care Walk Is Now Open! www.thalassemia.org/CareWalk2015   Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. The Care Walk on May 3, 2015 will raise funds to fight thalassemia, […]

Q&A with Dr. Richard Ward: Non-Transfusion-Dependent Thalassemia

January 13, 2015 – Below, Dr. Richard Ward answers some commonly-asked questions regarding non-transfusion-dependent thalassemia and its treatment.   Non-transfusion-dependent thalassemia (NTDT) is the term given to individuals with thalassemia that do not require regular blood transfusion but who still have some complications. This differentiates you from both thalassemia major and thalassemia trait/minor, respectively. There […]

Chelation Use and Illness

January 12, 2015 –  We would like to offer this advice from our Medical Advisory Board Chair, Dr. Ellis Neufeld, concerning some situations in which one may need to consider temporarily halting chelation therapy while treating another issue: 1. As a general rule, patients should always halt chelators (any chelator) temporarily for fever, and call […]

CAF Applauds Advances in Thalassemia Reported at Annual Hematology Meeting

December 11, 2014 – Exciting data from studies looking at new treatments for thalassemia presented at the annual meeting of the American Society of Hematology builds upon science supported by the Cooley’s Anemia Foundation and gives hope for the development of significant new treatments for the genetic blood disorder known as thalassemia. Two of the […]