I am a person with thalassemia

Welcome to the Cooley’s Anemia Foundation website!  The Cooley’s Anemia Foundation  exists to help individuals with thalassemia meet the challenges that are associated with living with this blood disorder.  (You can read about our mission and purpose by clicking here.)

Below are some links that may be of interest to individuals with thalassemia.

About Thalassemia

Clinical Trials in Thalassemia

Blood Safety

Thalassemia Treatment Centers

Downloadable Publications

News items of interest

Slides from 2015 Patient-Family Conference

July 22, 2015 – This year’s Patient-Family Conference was a notable success, with much valuable information presented over the course of the two days. CAF is pleased to make available in pdf form some of the information presented at the Conference. In order to access the pdfs, click on the title of each presentation (below). […]

Download CAF Focus Group Report

July 21, 2015 – This spring, CAF sponsored a series of focus groups among 102 individuals with thalassemia and parents of individuals with thalassemia in order to better assess the needs and wants of the U.S. thalassemia community. We are happy to now share the results of this project, which was conducted by Stat One […]

Photos from 2015 Patient-Family Conference

  July 13, 2015 – This year’s CAF Patient-Family Conference was a great success.  One of the most wonderful things about these Conferences is the opportunity for so many members of the thalassemia community to get together and exchange experiences, talk and just have fun. Below are a few pictures (photos by Thatcher Hullerman Cook) […]

Patients Invited to Apply for Distinguished Scholar Award

June 22, 2015 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2015 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established last year, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with a clinically significant […]

Agenda for Patient Conference is Available

April 21, 2015 – The agenda for CAF’s 2015 Patient-Family Conference is available and can be downloaded by clicking here. For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for […]

Novartis Announces Approval of Jadenu

April 1, 2015 – Novartis announced that the Food and Drug Administration (FDA) has approved Jadenu (deferasirox) tablets for the treatment of chronic iron overload due to blood transfusions in patients  2 years and older, and for chronic iron overload in non-transfusion-dependent thalassemia syndromes (NTDT) in patients 10 years and older. Jadenu is a new […]

2015 Patient-Family Conference Celebrates Self-Empowerment

March 27, 2015 – Registration is now open for CAF’s 2015 Patient~Family Conference!  For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for U.S. individuals with thalssemia and their family […]

“A Wonderful Journey” – Tracy Antonelli Talks About Adopting Children with Thalassemia

February 24, 2015 – Tracy Antonelli, an individual with thalassemia, and her husband have adopted three children from China over the past several years. Like Tracy, her adorable daughters have thalassemia. Below, CAF talks with Tracy about her experiences in going through the process of adopting children from another country. CAF:  Tell us a little […]

“Stronger Than We Think” – Joelle Zarcone on Running a Half Marathon

February 23, 2015 – On March 8, Joelle Zarcone will be running in the San Diego Half Marathon to raise money for CAF. Below, CAF talks with Joelle, a person with thalassemia, about her decision to participate in this endurance event.  CAF: How did you decide to participate in the San Diego Half Marathon? Joelle: […]

TIF Announces Photography Contest

February 2, 2015 – Thalassaemia International Federation (TIF has announced its 2nd International Photography Contest 2015, which is launched with the aim of creating awareness about thalassemia, in the context of the International Thalassemia Day  (May 8). Participation in this contest is open for all ages, and all countries across the world. Deadline The deadline for the competition […]