June 14, 2013 – It’s the New York Mets vs. the Atlanta Braves on July 22 and here’s a chance for you to take in an awesome game and do some awesome good at the same time. The Queens chapter of CAF invites you to watch this action-packed game from the Modell’s Clubhouse at Citi […]
June 14, 2013 – Today is World Blood Donor Day, a day to celebrate the generosity of all those who donate blood and to raise awareness of the need for blood donations. Individuals with thalassemia, many of whom require red blood cell transfusions on a regular basis, are aware of the importance of blood donation. […]
June 5, 2013 – Help the Cooley’s Anemia Foundation and the New York Mets hit one out of the field for those with thalassemia! On August 23, it’s Cooley’s Anemia Night at Citi Field in Queens, NY as the Amazin Mets take on the Detroit Tigers! In an effort to create awareness about Cooley’s anemia, […]
June 3, 2013 – The Spring 2013 issue of Lifeline, CAF’s newsletter, is now available for downloading. You can download the issue by clicking here. (Adobe Reader is required.)
May 14, 2013 – A big shout out to Gabriel Theophanous, President of the UK Thalassaemia Society, for competing in his second Virgin London Marathon – and for shaving 30 minutes off his past time! This is a tremendous achievement and demonstrates once again that advances in treatment are helping more people with thalassemia meet and […]
May 1, 2013 – The deadline for applying for one of the 2013 Sultan Bin Khalifa International Thalassemia Awards,established by H.H. Dr. Sheikh Sultan Bin Khalifa Al Nahyan in partnership with the Thalassaemia International Federation, is June 15. The Awards are intended to recognize outstanding contributions in thalassemia by medical professionals, researchers, patients, parents and organizations. […]
April 30, 2013 – The medical journal Pediatric Blood and Cancer published online on April 23 a study entitled “The Palatability and Tolerability of Deferasirox Taken With Different Beverages or Food.” This is known to many in the thalassemia community as “the Exjade food study;” as the official title suggests, it looks at the option […]
April 29, 2013 – As you already know (and you do know this, don’t you), May 5 is the official date for our annual Care Walk – a chance for people to show support for all those with thalassemia while raising funds to help CAF in the fight against thalassemia. But because we designed Care […]
April 22, 2013 – The 2013 Patient~Family Conference is coming (June 28-30) in Philadelphia. This is an incredible opportunity for thalassemia patients and family members to get together, hear a lot of important medical information, ask questions and have the chance to socialize. You really don’t want to miss it! We thought you might like […]
Save the date! The CAF 2014 Patient~Family Conference will be held the weekend of June 20-22 in Chicago. Check back here soon for more information.
