The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
Are you or a loved one considering gene therapy as a treatment option for transfusion dependent beta thalassemia? Watch the recording of the Gene Therapy Webinar featuring Dr. Sujit Sheth and reps from bluebird bio now!
October 26, 2021 – Dr. John Wood will be presenting a webinar on November 18 at 2:00 pm (Eastern) entitled “The Heart in Thalassemia” from 2:00 – 3:00 PM ET. This webinar is part of the Centers for Disease Control and Prevention’s (CDC’s) Public Health Webinar Series on Blood Disorders. In this webinar, Dr. Wood will discuss the three most […]
November 10, 2020 – Cooley’s Anemia Foundation is hosting a special webinar on Saturday, November 21 at 1:00 pm (Eastern) on “COVID-19 and Thalassemia.” Many members of the U.S. thalassemia community have questions about COVID-19 itself and in what ways it might affect individuals with thalassemia. This webinar is designed to answer some of those […]
October 7, 2020 – Dr. Farzana Sayani, the Director of the Penn Comprehensive Adult Thalassemia Program, will be presenting a webinar entitled “Evaluation and Management of Fertility in People with Thalassemia” on Thursday, November 5th from 2 PM-3 PM EST. This webinar is part of the Center for Disease Control and Prevention’s (CDC’s) Public Health […]
June 22, 2020 – If you were unable to join us for last Thursday’s webinar entitled “Overview of Novel Thalassemia Treatments” by Dr. Sujit Sheth of the New York Presbyterian Hospital/Weill Cornell Medical Center, the archived webinar can now be accessed online at: https://www.cdc.gov/ncbddd/blooddisorders/webinar.html
May 26, 2020 – Dr. Sujit Sheth, the Director of the Thalassemia Center at New York Presbyterian Hospital/Weill Cornell Medical Center, will be presenting a webinar entitled “Overview of Novel Thalassemia Treatments” on Thursday, June 18th from 2 PM-3 PM EST. This webinar is part of the Center for Disease Control and Prevention’s (CDC’s) Public Health Webinar […]
April 16, 2020 – TIF and the European Hematology Association (EHA) held a webinar today (Thursday, April 16) entitled ”Thalassaemia/SCD and COVID-19: Possible risks and a proposal for a patient pathway during the pandemic”. An expert panel from Italy and Cyprus which includes Dr. Maria D. Capellini, Dr. Raffaella Colombatti, and TIF Executive Director Dr. Androulla Eleftheriou, shared […]
January 28, 2019 – CAF Medical Advisory Board Chair Janet Kwiatkowski, MD, MSCE, will be the featured expert on the CDC’s Thalassemia Management webinar on February 28 from 2pm-3pm. During this webinar, Dr. Kwiatkowski will provide an overview of current, recommended treatments for people with thalassemia, with an emphasis on transfusion-dependent thalassemia. She will discuss […]
September 14, 2015 – The FDA (Food and Drug Administration) Office of Minority Health is holding a special webinar on Tuesday, September 29, entitled “Get to Know ClinicalTrials.Gov.” The webinar, which will run from 11:00 a.m. – 12:00 noon (EDT) is intended to explain what a person can expect to find on ClinicalTrials.gov and how […]