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Thank you for your interest in the Cooley’s Anemia Foundation.  If you are interested in receiving updates on thalassemia-related issues and are not already on our contact list, please click here to register for our updates.

Below are several areas that may be of interest to you.  Please click on the appropriate heading to see more information.

Medical Research Fellowship and Grant Opportunities from the Cooley’s Anemia Foundation

Clinical Trials in Thalassemia

Standards of Care Guidelines for Thalassemia

Patient-Oriented Publications on Thalassemia

A List of Some of the Larger Thalassemia Treatment Centers in the U.S.

 

News items of interest

Neufeld to Depart Medical Advisory Board, Kwiatkowski to Assume Chairmanship

January 30, 2017 – The Cooley’s Anemia Foundation is announcing a change in the Chairmanship of its Medical Advisory Board (MAB). Ellis Neufeld, MD, PhD, who has been Chair of the MAB since 2009, is stepping down as of March 1. Janet Kwiatkowski, MD, MSCE will be assuming the Chairmanship of this important Board. Dr. […]

Save the Date! 2017 TIF Conference

November 11, 2016 – Mark your calendars! The 14th International Conference on Thalasseamia & Haemoglobinopathies, as well as the 16th TIF International Conference for Patients & Parents, will take place in Germany sometime in October/November 2017. Exact dates to be announced. Who should attend: Patients and Patient/Parent Organizations Healthcare professionals/medical specialists Academics/researchers Policy-makers at national, […]

CAF Accepting Applications for 2017 Medical Research Fellowships and Grants

October 4, 2016 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia.  The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia;  Clinical Trials in Thalassemia Cell and Gene Therapy;  and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]

CAF Awards $202,500 Funding in Medical Research Fellowships

September 27, 2016- CAF is pleased to announce that four new Cooley’s Anemia Foundation Medical Research Fellowships and one renewal Fellowship have been awarded for the 2016-2017 grant cycle. In addition, this year we have awarded a new Clinical Research Grant to support ongoing clinical research in thalassemia. The total amount of funding for the […]

Interview: Ellen Fung on Nutrition and Thalassemia

Dr. Ellen Fung presented at the 10th Cooley’s Anemia Symposium on “Nutrition for Patients with Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia field […]

Interview: Vip Viprakasit on NTDT

  Dr. Vip Viprakasit presented at the 10th Cooley’s Anemia Symposium on “When to Transfuse in Patients with Non-transfusion-dependent Thalassemia.” CAF spoke with him at the Symposium about this topic; his interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital […]

CAF Accepting Applications for 2016 Research Grants and Fellowships

November 6, 2015 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia.  The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia;  Clinical Trials in Thalassemia Cell and Gene Therapy;  and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]

2015 Patient-Family Conference Celebrates Self-Empowerment

March 27, 2015 – Registration is now open for CAF’s 2015 Patient~Family Conference!  For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for U.S. individuals with thalassemia and their family […]

Global Experts to Share Knowledge at Tenth Cooley’s Anemia Symposium

March 20, 2015 – Leading thalassemia experts from around the world will converge in Illinois in October to participate in the Tenth Cooley’s Anemia Symposium. Presented by the New York Academy of Sciences (NYAS) and the Cooley’s Anemia Foundation (CAF), this major scientific meeting takes place October 18-22, 2015 in Rosemont, IL. “I am absolutely […]

TIF Establishes Renzo Galanello Training Fellowship

February 2, 2015 – Thalassaemia International Federation ( TIF) has announced a new thalassemia fellowship opportunity, established in honor of the late Renzo Galanello, Professor of Pediatrics at the University of Cagliari, Italy, and Director of the 2nd Pediatric Clinic, Department of Biomedical Sciences and Biotechnologies, Ospedale Regionale per le Microcitemie.  Dr. Galanello was a respected and […]