News
Tuesday, February 28th, 2023
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
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: Blog, Front Page, News, person with thalassemia
: Agios, beta thalassemia major, biotech, Cooley's anemia, e beta thalassemia, patient advocacy, pharma, PKD, Red Cell Revolution, SCD, Thal Pals, thalassemia
Friday, February 10th, 2023
The Cooley’s Anemia Foundation’s Westchester-Rockland Chapter welcomes all to experience its 25th annual “Night at the Races” benefit on April 1, 2023.
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: Blog, Events, Front Page, News, Upcoming Events, Westchester-Rockland Chapter
: Cooley's anemia, events, fundraiser, Night at the Races, rockland, rockland county, thalassemia, westchester, westchester-rockland chapter
Monday, November 14th, 2022
The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
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: Front Page, News
: CDC, checklist, clinical management, Cooley's anemia, doctor resources, medical provider, patient resources, resources, thalassemia, thalassemia toolkit, toolkit, treatment, webinar
Friday, November 4th, 2022
The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia.
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: Front Page, Grants & Fellowships, Medical Research, News
: application, Clinical Trials in Thalassemia Cell and Gene Therapy, fellowships, gene therapy, grant, grants, medical research, Ongoing Clinical Research in Thalassemia, Research Fellowships
Wednesday, October 12th, 2022
Did you know high levels of social support are linked to improved health outcomes in people with chronic health conditions? Join a virtual support group today!
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: Front Page, News
: mental health, social support, thalassemia, virtual groups
Friday, October 7th, 2022
Are you or a loved one considering gene therapy as a treatment option for transfusion dependent beta thalassemia? Watch the recording of the Gene Therapy Webinar featuring Dr. Sujit Sheth and reps from bluebird bio now!
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: Front Page, News, Webinars
: beta-thalassemia, bluebirdbio, gene therapy, pharma, Sujit Sheth, TDT, thalassemia, treatment, webinar, ZYNTEGLO
Thursday, September 22nd, 2022
Put these upcoming informational webinars on your calendar!
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: Events, Front Page, Medical Research, Upcoming Events, Webinars
: beta-thalassemia, bluebird bio, caregiver education, gene therapy, patient education, Sujit Sheth, TDT, treatment, Weill Cornell, ZYNTEGLO
Tuesday, September 6th, 2022
CAF is accepting applications for its 2023-2024 Patient Incentive Awards and Educational Incentive Awards for Children of Individuals with Thalassemia. The purpose of these Awards is to inspire thalassemia patients, as well as children of thalassemia patients, to further their education and career goals.
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: Front Page, News, person with thalassemia
: awards, incentive awards, patient, scholarship, school
Sunday, September 4th, 2022
Looking to support a local Care Walk team? Join or donate today!
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: Care Walk, Events, Front Page, News, Upcoming Events
: Care Walk, events
Sunday, August 21st, 2022
When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.
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: Blog, Front Page, News, Patients in the News
: Board of Directors, Maria Hadjidemetriou, Maybelline, patient, patient profile, patient stories, Thalassaemia International Federation, thalassemia, TIF
