This week’s spotlight is all about Team Ficarra. Talk about longevity – the Ficarra family is one of the founders of the Cooley’s Anemia Foundation!
This week’s spotlight is all about Team Ficarra. Talk about longevity – the Ficarra family is one of the founders of the Cooley’s Anemia Foundation!
CAF is pleased to announce one new Cooley’s Anemia Foundation Medical Research Fellowship and one renewal Fellowship have been awarded for the 2022-2023 grant cycle. The total amount of funding for the two research Fellowships is $100,000.
The Spotlight is on Maria Saradpon’s Team CAF California, who shares her top tips to fundraising success.
The StL Thal Pals walk in, you guessed it, St Louis, Missouri! Erica Stick is the Care Walk Captain and this is how she put her walk together. “I was lucky enough to get to know so many amazing people in the thalassemia community in my previous job,” says Erica. “Working with them daily really […]
Meet Yasmeen Anis. Yasmeen Care Walks because she has thalassemia and she wants to fundraise toward a cure! Her team has been Care Walking in Spring Hill, Florida since 2018. Yasmeen first got involved with Care Walk by joining a friend’s team and participating virtually from another state. She then decided to start her own […]
April 23, 2022 – History was made today at the annual board meeting of the Cooley’s Anemia Foundation (CAF) when Ralph Colasanti was elected the first person with thalassemia to serve as National President of the Foundation’s board of directors. The Foundation, which was started in 1954, is the primary voice for those with thalassemia, […]
The Institute for Clinical and Economic Review (ICER) announced today that it will assess the comparative clinical effectiveness and value of betibeglogene autotemcel (Zynteglo/LentiGlobin, bluebird bio) for the treatment of beta thalassemia. An FDA decision on betibeglogene autotemcel is expected in mid-2022. ICER is inviting public comment on its initial Draft Scoping Document, which details […]
November 3, 2021 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Support for Ongoing Clinical Research in Thalassemia Research Fellowships Clinical Trials in Thalassemia Cell and Gene Therapy Details are as follows: Support for Ongoing Clinical Research in […]
October 27, 2021 – We invite you to read about Navdeep Singh’s journey with thalassemia at the following link: https://www.cdc.gov/ncbddd/thalassemia/stories.html. CAF thanks Navdeep for sharing his personal story with the thalassemia community and the CDC for helping people learn more about living with thalassemia.
