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Ralph Colasanti Elected National President of CAF

Ralph Colasanti

April 23, 2022 – History was made today at the annual board meeting of the Cooley’s Anemia Foundation (CAF) when Ralph Colasanti was elected the first person with thalassemia to serve as National President of the Foundation’s board of directors. The Foundation, which was started in 1954, is the primary voice for those with thalassemia, […]

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ICER To Look at Gene Therapy for Thalassemia

The Institute for Clinical and Economic Review (ICER) announced today that it will assess the comparative clinical effectiveness and value of betibeglogene autotemcel (Zynteglo/LentiGlobin, bluebird bio) for the treatment of beta thalassemia. An FDA decision on betibeglogene autotemcel is expected in mid-2022.  ICER is inviting public comment on its initial Draft Scoping Document, which details […]

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CAF Accepting Applications for 2022 Medical Research Grants & Fellowships

November 3, 2021 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Support for Ongoing Clinical Research in Thalassemia Research Fellowships Clinical Trials in Thalassemia Cell and Gene Therapy Details are as follows: Support for Ongoing Clinical Research in […]

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