The Institute for Clinical and Economic Review (ICER) announced today that it will assess the comparative clinical effectiveness and value of betibeglogene autotemcel (Zynteglo/LentiGlobin, bluebird bio) for the treatment of beta thalassemia. An FDA decision on betibeglogene autotemcel is expected in mid-2022. ICER is inviting public comment on its initial Draft Scoping Document, which details […]
November 3, 2021 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in three categories: Support for Ongoing Clinical Research in Thalassemia Research Fellowships Clinical Trials in Thalassemia Cell and Gene Therapy Details are as follows: Support for Ongoing Clinical Research in […]
October 27, 2021 – We invite you to read about Navdeep Singh’s journey with thalassemia at the following link: https://www.cdc.gov/ncbddd/thalassemia/stories.html. CAF thanks Navdeep for sharing his personal story with the thalassemia community and the CDC for helping people learn more about living with thalassemia.
October 26, 2021 – Dr. John Wood will be presenting a webinar on November 18 at 2:00 pm (Eastern) entitled “The Heart in Thalassemia” from 2:00 – 3:00 PM ET. This webinar is part of the Centers for Disease Control and Prevention’s (CDC’s) Public Health Webinar Series on Blood Disorders. In this webinar, Dr. Wood will discuss the three most […]
October 19, 2021 – Steve Hemraj, MPA is very excited and honored to join the team at Cooley’s Anemia Foundation as its Patient Outreach Director. He believes patient experience is paramount to linkage, retention, and optimal health outcome. Steve’s eighteen years knowledge and experience in patient outreach and engagement, clinical experience and quality improvement well […]
October 18, 2021 – The 2021 TIF International Conference will be held online Nov. 19-21. Registration is free; for more information, go to: www.tifeducation.org
October 15, 2021 – The Cooley’s Anemia Foundation is now accepting applications for its 2021-2022 Patient Incentive Awards, as well as the 2021-2022 Educational Incentive Awards for Children of Individuals with Thalassemia. These awards are open to thalassemia patients, as well as children of thalassemia patients, who are U.S. residents and are currently pursuing education […]
October 13, 2021 – Congratulations to Radhika Sawh and Lauren Morse on the recent publication of their paper, “Transfer of care for people with severe forms of thalassemia: Learning from past experiences to create a transition plan,” in The Journal of Pediatric Nursing! This paper addresses an ongoing need in the thalassemia community and we are […]
CAF’s Online Evening of Giving is Tuesday, October 19 at 7:00 pm Eastern. Join Us for This Special Celebration! Register here: https://fundraising.thalassemia.org/cafgiving2021.
September 24, 2021– Peter Chieco, Managing Wealth Management Director of Morgan Stanley Wealth Management in Greenwich, has been announced as the recipient of the Lifetime Achievement Award as part of the 15th Annual Invest in Others Awards. Chieco is being honored for his work with Cooley’s Anemia Foundation, which will receive a $75,000 donation from […]
