News

Join CAF’s Virtual Care Walk on September 19

September 3, 2021 – On September 19, thousands of supporters in cities across the U.S. will be participating in our Care Walk in honor and support of all those living with the challenges of thalassemia. Care Walk is the Cooley’s Anemia Foundation’s largest annual fundraising event, bringing together the thalassemia community and its supporters around […]

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Gene Therapy Trial for ALD Halted

August 9, 2021 – bluebird bio has announced that a patient in their gene therapy trial for early cerebral adrenoleukodystrophy (ALD) has developed MDS (myelodysplastic syndrome).  In line with their protocols, bluebird has shared relevant data and sought advice about this report with the regulatory authorities, trial investigators, and the independent Data Monitoring Committee for […]

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CAF Shares Two New Videos Created by CAF Social Worker Kathleen Durst

July 29, 2021 – CAF is sharing two new videos created by our social worker Kathleen Durst.  The first video is is entitled “Managing Thoughts and Emotions,” and can be accessed here: https://www.youtube.com/watch?v=q4_CQcAxv-M. The second video is entitled “Tolerating and Sending Away Physical Pain,” and can be accessed here: https://www.youtube.com/watch?v=0_pNzyL4RAs. U.S. thalassemia patients and family […]

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CAF President Peter Chieco Selected as Finalist for Lifetime Achievement Award by Invest in Others Charitable Foundation

July 14, 2021 – Cooley’s Anemia Foundation congratulates Peter Chieco, CAF Volunteer National President, on being selected as one of three national finalists for the Lifetime Achievement Award as part of the 15th Annual Invest in Others Awards. Mr. Chieco’s decades of work on behalf of the Cooley’s Anemia Foundation has gained him this unique […]

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International Meeting for People with Thalassemia on June 26, 2021

May 24, 2021 – On June 26, ABRASTA (the thalassemia association of Brazil) is holding an online international meeting for people with thalassemia. This will be an online event to bring together thalassemia patients from different ages, in different rooms, from different countries so they can get to know people who face thalassemia in other countries […]

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CAF Shares New Video on Understanding and Managing Worry

May 24, 2021 – CAF is sharing a new video created by our social worker Kathleen Durst on Understanding and Managing Worry.  Watch the video at the following link: https://www.youtube.com/watch?v=NsRqPgs-mFA. U.S. thalassemia patients and family members should contact Kathleen at kdurst@thalassemia.org if they wish to learn more about the work that Kathleen does with members […]

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Registration Now Open for 2021 CAF Patient-Family Conference (August 13-15)

May 13, 2021 – Registration is now open for the 2021 CAF Patient-Family Conference to be held August 13-15, 2021 in New Brunswick, NJ.  This conference will be a live, in-person event; in addition, the Saturday sessions will be available online for those who cannot attend in person.  We will be following all Covid-19 safety […]

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