September 3, 2021 – On September 19, thousands of supporters in cities across the U.S. will be participating in our Care Walk in honor and support of all those living with the challenges of thalassemia. Care Walk is the Cooley’s Anemia Foundation’s largest annual fundraising event, bringing together the thalassemia community and its supporters around […]
August 9, 2021 – bluebird bio has announced that a patient in their gene therapy trial for early cerebral adrenoleukodystrophy (ALD) has developed MDS (myelodysplastic syndrome). In line with their protocols, bluebird has shared relevant data and sought advice about this report with the regulatory authorities, trial investigators, and the independent Data Monitoring Committee for […]
August 9, 2021 – Today at noon, CAF Long Island Chapter launched its clothing fundraiser. This is their second fundraiser of this type, after their very successful winter merch fundraiser this past December. Items include a CAF logo sweatshirt and CAF logo quarter-zip pullover sweater. Sales end in two weeks on August 23, so we […]
August 9, 2021 – CAF is sharing a new video created by our social worker Kathleen Durst on Taking Care of Yourself. Access the video here: https://youtu.be/GZyxGsfmuXQ. U.S. thalassemia patients and family members should contact Kathleen at kdurst@thalassemia.org if they wish to learn more about the work that Kathleen does with members of our U.S. […]
July 29, 2021 – CAF is sharing two new videos created by our social worker Kathleen Durst. The first video is is entitled “Managing Thoughts and Emotions,” and can be accessed here: https://www.youtube.com/watch?v=q4_CQcAxv-M. The second video is entitled “Tolerating and Sending Away Physical Pain,” and can be accessed here: https://www.youtube.com/watch?v=0_pNzyL4RAs. U.S. thalassemia patients and family […]
July 16, 2021 – CAF welcomes children twelve and under to participate in our 2021 Children’s Art Contest! The winner’s art will appear on the back of the official Care Walk 2021 shirt and the winner will receive a $100 American Express gift card. The purpose of this art contest is to raise awareness about […]
July 14, 2021 – Cooley’s Anemia Foundation congratulates Peter Chieco, CAF Volunteer National President, on being selected as one of three national finalists for the Lifetime Achievement Award as part of the 15th Annual Invest in Others Awards. Mr. Chieco’s decades of work on behalf of the Cooley’s Anemia Foundation has gained him this unique […]
May 24, 2021 – On June 26, ABRASTA (the thalassemia association of Brazil) is holding an online international meeting for people with thalassemia. This will be an online event to bring together thalassemia patients from different ages, in different rooms, from different countries so they can get to know people who face thalassemia in other countries […]
May 24, 2021 – CAF is sharing a new video created by our social worker Kathleen Durst on Understanding and Managing Worry. Watch the video at the following link: https://www.youtube.com/watch?v=NsRqPgs-mFA. U.S. thalassemia patients and family members should contact Kathleen at kdurst@thalassemia.org if they wish to learn more about the work that Kathleen does with members […]
May 13, 2021 – Registration is now open for the 2021 CAF Patient-Family Conference to be held August 13-15, 2021 in New Brunswick, NJ. This conference will be a live, in-person event; in addition, the Saturday sessions will be available online for those who cannot attend in person. We will be following all Covid-19 safety […]
