September 25, 2008 – Due to the continuing downpour that is blanketing the metropolitan New York area, the Suffolk chapter of the Cooley’s Anemia Foundation has been forced to cancel its scheduled September 27 “Miles for Smiles Bike-a-Thon” this year. The chapter does not have a rain date and will not be rescheduled. We apologize […]
September 23, 2008 – The Cooley’s Anemia Foundation announces that it is accepting applications for its 2008-2009 Patient Incentive Awards. Any thalassemia major or intermedia patient pursuing higher education who is a U.S. resident can apply for one of these awards, which range from $250 reimbursement for students in certificate programs to up to $2,000 […]
September 22, 2008 – It is with profound sadness that the Cooley’s Anemia Foundation announces the passing of Tess Ficarra, beloved co-founder of the Foundation, on the morning of September 21. Ms. Ficarra, who was 100 years old, passed away peacefully. Viewings will be held Monday, September 22, at John E. Day Funeral Home, 85 Riverside […]
On August 5, Radhika Sawh, former CAF Patient Services Director, appeared on Fox 5 ‘s Good Day New York during a segment about the need for blood donations. She discussed thalassemia and her experience with it. For those who missed it, the clip is still up here.
September 5, 2008 – CAF National President Anthony J. Viola will be a guest on Q 104.3 FM’s radio program Sonstein Sunday on Sunday, October 5. The program, hosted by New York station WAXQ’s popular Shelli Sonstein, will air at 7:00 a.m. At this point, it seems likely that Tony’s segment will air around 7:15 […]
Funding medical research is one of CAF’s biggest priorities. Our medical research fellowship program has been encouraging and assisting promising researchers for decades; more recently, our grants for translational research in adult thalassemia have allowed us to expand into new areas of concern to the thalassemia community. This year, CAF approved 6 grants in translational […]
Researchers from Weill Cornell Medical College may have discovered the precise role of a gene in beta-thalassemia, The study, entitled “Decreased differentiation of erythroid cells exacerbates ineffective erythropoiesis in B-thalassemia” was published in the May 14, 2008 online issue of the journal Blood, the official publication of the American Society of Hematology (ASH). Splenectomy (spleen removal) […]
The National Heart, Lung and Blood Institute has halted its Cardiac Deferoxamine/L1 Study due to an inability to enroll a sufficient number of patients to provide statistically relevant results. The purpose of the study was to determine whether left ventricular function improves more rapidly with deferoxamine (DFO) and deferiprone (L1) combination therapy than with DFO […]
CAF speaks with Johnny Chou, Clinical Social Worker at Children’s Hospital Los Angeles. What is your official title at Children’s Hospital Los Angeles (CHLA), and can you tell us a little about what you do? I am the Clinical Social Worker that works directly with patients who live with thalassemia and other red blood cell […]
