The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia.
Did you know high levels of social support are linked to improved health outcomes in people with chronic health conditions? Join a virtual support group today!
Are you or a loved one considering gene therapy as a treatment option for transfusion dependent beta thalassemia? Watch the recording of the Gene Therapy Webinar featuring Dr. Sujit Sheth and reps from bluebird bio now!
CAF is accepting applications for its 2023-2024 Patient Incentive Awards and Educational Incentive Awards for Children of Individuals with Thalassemia. The purpose of these Awards is to inspire thalassemia patients, as well as children of thalassemia patients, to further their education and career goals.
When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.
bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.
The event organizers are asking guests to help raise money for two selected charities: “Cooley’s Anemia Foundation” which funds medical research and education to benefit individuals living with the genetic blood disorder, thalassemia, and “A Chance in Life -The Village of Staten Island Program,” a US-based program in New York City for forgotten youth dedicated to providing shelter, education, and leadership development for at-risk youth.
