Leading the Fight Against Thalassemia

Leading the Fight Against Thalassemia

NYS OSIA Dine Around Set for April 3 Print E-mail
Written by Craig Butler   
Wednesday, 25 January 2012 14:51
January 25, 2012 - The New York State Grand Lodge of OSIA (Order Sons of Italy in America) has set its 2012 Dine-Around for Cooley’s Anemia for Tuesday, April 3 – and Michele Sewitch plans to be there for sure.
 CAF OSIA logo

 

Last Updated ( Wednesday, 25 January 2012 15:10 )
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"A Brighter Future, Day by Day" Print E-mail
Written by Roger Burks   
Thursday, 19 January 2012 16:23
gab & ter
 
January, 2012 - It’s always difficult being a first-time parent – but when your baby is diagnosed with a blood disorder like thalassemia, life is immediately even harder.
Last Updated ( Friday, 27 January 2012 18:40 )
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2012 Miracle Plunge Benefits CAF and Two Other Worthwhile Causes Print E-mail
Written by Craig Butler   
Thursday, 12 January 2012 19:39

January 11, 2012 - One quick dip in the ocean can strengthen the fight against thalassemia, support specialized healthcare for kids AND help children with developmental disabilities help themselves. Plunge

Last Updated ( Wednesday, 18 January 2012 17:53 )
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Let Your Heart Dance in Staten Island on February 11 Print E-mail
Written by Craig Butler   
Thursday, 12 January 2012 19:26

January 12, 2012 - There's no better way to celebrate Valentine's Day - or to simply have a really splendid evening - than by attending the Let Your Heart Dance on February 11.

Last Updated ( Wednesday, 18 January 2012 17:59 )
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Meatballs and Martinis Benefit for CAF on January 16 Print E-mail
Written by Craig Butler   
Friday, 06 January 2012 17:55

January 5, 2012 - Join CAF's North Jersey chapter for a festive evening at the "Meatballs & Martinis Happy Hour" at Anthony's Coal Fired Pizza on January 16. 

Last Updated ( Friday, 06 January 2012 17:58 )
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Results of Exjade for Non-Transfused Patients Study Print E-mail
Written by Craig Butler   
Friday, 16 December 2011 15:21

December 16, 2011 - Results from THALASSA, a placebo-controlled study examining the benefit of iron chelation with Exjade® (deferasirox) in patients with non-transfusion-dependent thalassemia (NTDT), were presented on December 13 at the 53rd Annual Meeting of the American Society of Hematology in San Diego.  “Patients with NTDT” could include some individuals with beta thalassemia intermedia, hemoglobin H or e-beta thalassemia.

Last Updated ( Friday, 16 December 2011 15:31 )
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Man with Thalassemia Major Runs NYC Marathon Print E-mail
Written by Craig Butler   
Thursday, 15 December 2011 19:30
December 15, 2011 - Every year, the world famous New York City Marathon attracts more than 45,000 runners – and this year, one of those runners was Ben Li, a man with beta thalassemia major.
Last Updated ( Friday, 16 December 2011 02:55 )
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David Nathan Presented with Coulter Award Print E-mail
Written by Craig Butler   
Thursday, 15 December 2011 22:00

December 14, 2011 - The American Society of Hematology (ASH) presented the 2011 Wallace H. Coulter Award for Lifetime Achievement in Hematology, the Society’s highest honor, to David G. Nathan, MD, of the Dana-Farber Cancer Institute and Children’s Hospital Boston for his remarkable career combining outstanding teaching, pioneering research, and excellence in clinical care.

Last Updated ( Thursday, 15 December 2011 22:10 )
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Donate Your Used Vehicle and Help CAF Print E-mail
Written by Craig Butler   
Wednesday, 07 December 2011 20:39

December 7, 2011 - The Queens chapter of CAF would like to remind you of its ongoing vehicle donation program. 

Last Updated ( Wednesday, 07 December 2011 20:43 )
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Oral Chelator Ferriprox Available in U.S. as of December 5 Print E-mail
Written by Craig Butler   
Monday, 05 December 2011 15:10
December 5, 2011 – The oral chelator Ferriprox, recently approved by the U.S. Food and Drug Administration, is available to U.S. patients as of today (December 5, 2011). 
Last Updated ( Monday, 05 December 2011 15:59 )
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Download October Issue of LIFELINE Print E-mail
Written by Craig Butler   
Friday, 18 November 2011 17:00
November 15, 2011 - The October, 2011 issue of Lifeline, the Cooley's Anemia Foundation's newsletter, can be downloaded as a pdf by clicking here.
Last Updated ( Friday, 18 November 2011 17:00 )
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