November 30, 2015 – Two-year-old Emily Grace was born with the genetic blood disorder beta thalassemia major, or Cooley’s anemia. Even at her young age, she depends on blood transfusions every 4 weeks in order to survive. But Emily Grace is a fighter, and she comes from a family and entire community of people with […]
October 15, 2013 – Representatives of the Cooley’s Anemia Foundation were spreading important information about thalassemia on two prime radio programs last week and through a special Columbus Day Parade appearance. On October 10, CAF Board Member Amy Celento was the special guest of Dr. Nieco Goldberg on her program, “Beyond the Heart.” Amy is […]
Septembr 20, 2103 – Dear Friends, On this, the 59th anniversary of our founding, the Cooley’s Anemia Foundation is proud to announce the launch of our “Council of Heroes” initiative. This new investment campaign is designed to move the Cooley’s Anemia Foundation to a new level of activity and achievement, thus enabling us to more […]
September 17, 2013 – The Cooley’s Anemia Foundation (CAF) is proud to announce that it has been selected to receive the prestigious Sultan Bin Khalifa International Award for Thalassaemia Society of Excellence. His Highness Sultan Bin Khalifa Al Nahyan of the United Arab Emirates has named CAF to receive this first Thalassemia Society of Excellence Award at the Thalassaemia International […]
July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy? Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart? Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]
May 12, 2013 – This year’s Care Walk was a tremendous success, helping raise funds and showing the support of so many people for those affected by thalassemia. We won’t have the final figures for a few days, but we wanted to share a few photos from the many Walks around the country and to […]
May 1, 2013 – Alfred Torres has organized a Care Walk in Hawaii the last two years because his son has thalassemia, but it has ended up as a learning experience for some of the students that Al teaches. “I decided to get the Catholic school I teach at to get involved in this event […]
April 11, 2013 – “I would like to encourage everyone to participate in the Care Walk in even the smallest fashion because you may not know the impact you could be making for future generations.” So says Chi Pham, who along with Faye Lam and several other DC area supporters is organizing this year’s “Team […]
April 5, 2013 – CAF is thrilled to announce the receipt of a very generous bequest from the Sam and Lorenza DeMuro Charitable Trust. The bequest is in the form of a multi-year donation of $150,000 per year. The funds from this bequest will be split equally between the Foundation’s medical research and patient services […]
April 4, 2013 – Erin Dean and her “A Team” will be Care Walking at Hoboken Waterfront Park, while Erin’s sister, Katherine, will lead a Walk in Atlanta. (Click here for the A-Team’s Care Walk page!) Erin’s Story: Erin got involved in Care Walk last year because her husband, who has beta thalassemia major, had recently faced […]
