Dr. Maria Domenica Cappellini presented at the 10th Cooley’s Anemia Symposium on “Clinical Features of Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia […]
December 1, 2015 – Today is Giving Tuesday, the online community’s annual day for making charitable donations to causes that inspire and move us to make a difference – like the Cooley’s Anemia Foundation. We hope that today you will let people you know and love know that CAF matters to you. Several members of […]
October 28, 2015 – A packed house of 240 clinicians, scientists, nurses, industry, consumers and other participants attended the 10th Cooley’s Anemia Symposium in Rosemont, IL from October 18-22. This invaluable meeting, presented by the Cooley’s Anemia Foundation (CAF) and the New York Academy of Sciences(NYAS) is an anticipated and milestone event held only every […]
August 25, 2014 – New explorations in gene editing. Connections between thyroid hormones and hemoglobin. Efficiency and safety in gene therapy. Using a protein to control iron. These are the ideas behind the four exciting new studies being funded by the Cooley’s Anemia Foundation this year. These new fellowships join four renewed fellowships and a […]
July 29, 2014 – Two amazing teen-age girls who until recently had never heard of Cooley’s anemia are now among our greatest allies in the fight against thalassemia. Amanda Rodriguez, 15, and Nairobi Mendez, 18, are friends who were living in Lodi, NJ. This spring, one of Amanda’s friends re-tweeted a post from Lisa Vigliotti […]
April 29, 2014 – Melissa Mannara is one of the captains of Team Jovi, which is organizing a wonderful Care Walk in Rochester on May 4. (You can support it and learn more about it by clicking here!) CAF spoke with Melissa about why she is putting so much effort into a Care Walk this […]
High school seniors have big decisions to make. Wanda, a young woman with thalassemia, had a REALLY big one to make! As the co-president of her senior class, Wanda had so much on her plate already. “I had a lot of different responsibilities to help wrap up the end of the year, as well as […]
Getting a PhD is hard, but getting a PhD while dealing with thalassemia is even harder. Anish didn’t let that stop him from earning his PhD – or from achieving any of his other dreams! It’s really amazing. Getting any kind of PhD is a challenge, but Anish’s comes from one of the best schools […]
We see a microscope. Dr. Rivella sees Hope. When Stefano Rivella looks through a microscope or examines a blood sample, he’s not just looking at what’s in front of his eyes. He’s seeing how he can take what he’s looking at and use it to find out more about gene therapy for thalassemia or how […]
Sometimes giving means giving back. Just ask Chi. Chi was born with thalassemia and has worked hard to make sure that this blood disorder doesn’t run his life. He attributes his success in this area to the support he has received from his family, his doctors, other patients and, of course, the Cooley’s Anemia Foundation […]
