Donors

Registration for Care Walk 2013 Is Open

January 6, 2013 – Registration for CAF’s Care Walk 2013 is now open!  Sign up today to participate in the May 5 event by clicking here! Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country.  Rather than hold one huge […]

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Thalassemia Patient Awarded Asian Pacific Community Fund Scholarship

January 23, 2013 – Aaron Cheng, a sophomore at Harvard University who has beta thalassemia major, has been awarded a 2012 Scholarship Award from the Asian Pacific Community Fund in association with Verizon. He is one of five recipients in this awards cycle. The Asian Pacific Community Fund partners with Verizon to financially assist students […]

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U.S.-Based Gene Therapy Study Begins Treating Participants

January 10, 2013 – CAF has learned that the first U.S.-based clinical trial in gene therapy for beta-thalassemia has begun treating trial participants.   The Phase 1 study, the official title of which is “ß-Thalassemia Major With Autologous CD34+ Hematopoietic Progenitor Cells Transduced With TNS9.3.55 a Lentiviral Vector Encoding the Normal Human ß-Globin Gene,” is […]

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Medical Research Receives Boost from CAF

August 2, 2012 – The Cooley’s Anemia Foundation is allocating $317,500 in medical research funding this year to a range of important and exciting projects.  This funding represents one new and two renewed CAF Medical Fellowships; two new and two delayed clinical research grants; and a new gene therapy research grant. Funding medical research has long been […]

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U.S. Gene Therapy Trial for Thalassemia Receives FDA Approval

July17, 2012 Memorial Sloan-Kettering Cancer Center will begin evaluating a new stem-cell-based gene therapy for patients with the inherited blood disorder beta (β)-thalassemia. The clinical trial is the first to receive US Food and Drug Administration approval to treat this disease with genetically engineered cells and is a culmination of more than two decades of […]

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"Researching a Better Way" – Patient Profile of Robert Mannino

June 12, 2012 – Robert Mannino knows more about blood transfusions than most people. Diagnosed with thalassemia when he was just six months old, he’s spent much of his life in clinics, hooked up to transfusion machines for treatment of the disorder Now 20 years old and a junior at the Georgia Institute of Technology […]

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"Trying New Things Every Day" – Patient Profile of Aaron Cheng

April 6, 2012 – My name is Aaron Cheng, and I’ve just completed my first semester of college at Harvard University. I don’t remember when I was diagnosed with beta thalassemia major, which is also known as Cooley’s Anemia, but my parents tell me it was when I was around one year old.  We were […]

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