This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
October 15, 2013 – Representatives of the Cooley’s Anemia Foundation were spreading important information about thalassemia on two prime radio programs last week and through a special Columbus Day Parade appearance. On October 10, CAF Board Member Amy Celento was the special guest of Dr. Nieco Goldberg on her program, “Beyond the Heart.” Amy is […]
September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here. (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]
Septembr 20, 2103 – Dear Friends, On this, the 59th anniversary of our founding, the Cooley’s Anemia Foundation is proud to announce the launch of our “Council of Heroes” initiative. This new investment campaign is designed to move the Cooley’s Anemia Foundation to a new level of activity and achievement, thus enabling us to more […]
September 17, 2013 – The Cooley’s Anemia Foundation (CAF) is proud to announce that it has been selected to receive the prestigious Sultan Bin Khalifa International Award for Thalassaemia Society of Excellence. His Highness Sultan Bin Khalifa Al Nahyan of the United Arab Emirates has named CAF to receive this first Thalassemia Society of Excellence Award at the Thalassaemia International […]
September 13, 2013 – Columbus Day is right around the corner, and once again the Cooley’s Anemia Foundation will be raising thalassemia awareness through its participation in New York City’s annual parade on October 14! And YOU can be a part of it! There’s nothing quite like the Columbus Day Parade in New York and […]
August 21, 2013 – If you or your child needs to talk with school personnel about your experience with thalassemia and how it may impact attendance or schoolwork, CAF has a new publication that can help: The School Toolkit for People with Transfusion-Dependent Thalassemia. Over the years, the Cooley’s Anemia Foundation has heard from some patients […]
August 14, 2013 – Thanks to advances in technology, more and more people with thalassemia are able to utilize MRI (magnetic resonance imaging) to get an assessment of whether iron is affecting their livers or hearts. In order to help patients prepare for these MRI-based tests, CAF, as part of a collaborative agreement with the Centers […]
August 13, 2013 – Healthy People 2020 will host a special webinar on “The Impact of Systems Improvements: A Progress Review Webinar on Healthcare-Associated Infections & Blood Disorders and Blood Safety” on Wednesday, August 28, from 1:00-3:00 p.m. EDT. Join HHS Assistant Secretary for Health, Dr. Howard Koh, and experts from the field on Wednesday, […]
August 12, 2013 – Centric Health Resources is now launching its Thalassemia Health Connections Program, a new health outcomes program that focuses on people with transfusion-dependent thalassemia. The goal of the program is to help patients and their caregivers on their personal journey living with a chronic condition, especially in terms of how it affects […]
August 6, 2013 – It’s important for all families to develop a plan of action to use in the event of an emergency situation, especially if your family includes a person with thalassemia. CAF, as part of a collaborative agreement with the Centers for Disease Control and Prevention, has created a checklist which people with thalassemia […]
