January 10, 2014
This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
January 10, 2014
The following is a notice that, RFA-DD-14-003, “Pilot Interventions to Promote the Health of People with Blood Disorders,” has been published with the correct dates on Grants.gov, December 23, 2013. → Deadline date is: March 06, 2014. To Access the Announcement & Application Package: 1. Go to: www.grants.gov 2. Select: “Applicants” from the top menu 3. Select: “Apply for Grants” 4. Select: […]
High school seniors have big decisions to make. Wanda, a young woman with thalassemia, had a REALLY big one to make! As the co-president of her senior class, Wanda had so much on her plate already. “I had a lot of different responsibilities to help wrap up the end of the year, as well as […]
Getting a PhD is hard, but getting a PhD while dealing with thalassemia is even harder. Anish didn’t let that stop him from earning his PhD – or from achieving any of his other dreams! It’s really amazing. Getting any kind of PhD is a challenge, but Anish’s comes from one of the best schools […]
We see a microscope. Dr. Rivella sees Hope. When Stefano Rivella looks through a microscope or examines a blood sample, he’s not just looking at what’s in front of his eyes. He’s seeing how he can take what he’s looking at and use it to find out more about gene therapy for thalassemia or how […]
Sometimes giving means giving back. Just ask Chi. Chi was born with thalassemia and has worked hard to make sure that this blood disorder doesn’t run his life. He attributes his success in this area to the support he has received from his family, his doctors, other patients and, of course, the Cooley’s Anemia Foundation […]
November 30, 2015 – Two-year-old Emily Grace was born with the genetic blood disorder beta thalassemia major, or Cooley’s anemia. Even at her young age, she depends on blood transfusions every 4 weeks in order to survive. But Emily Grace is a fighter, and she comes from a family and entire community of people with […]
October 21, 2013 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH IN THALASSEMIA The Cooley’s Anemia Foundation invites national and international applications for 2014-2015 grants to support ongoing clinical research projects in Thalassemia. The goal […]
October 17, 2013 – Cammie Brandofino, a current Board member of CAF and former Vice President of the Staten Island chapter, will be honored at the Garibaldi-Meucci Museum’s 25th Annual Fundraising Brunch on November 16. The event runs from 1:00 a.m. – 1:00 p.m. at LiGreci’s Staaten. In addition to Cammie Brandofino, honorees will include Salvatore and […]
October 16, 2013 – CAF is urging all supporters to contact their representatives in Congress immediately to urge that the government be reopened without further delay. The shutdown is having a negative impact on thalassemia research which we cannot afford. Some of you may prefer to call; others may opt for email. This information will help […]