School Toolkit for Thalassemia Now Available for Download
August 21, 2013 – If you or your child needs to talk with school personnel about your experience with thalassemia and how it may impact attendance or schoolwork, CAF has a new publication that can help: The School Toolkit for People with Transfusion-Dependent Thalassemia.
Over the years, the Cooley’s Anemia Foundation has heard from some patients and parents who have encountered difficulties with school officials when their child has had to miss classes to get transfusions or has had schoolwork otherwise impacted by issues related to thalassemia.
We’ve prepared this Toolkit to give you ample information to help with issues that may arise in connection with your child’s school participation. This Toolkit can provide guidance in communicating with teachers, school nurses and other school personnel about the challenges that thalassemia presents.
Please note: CAF is in the process of developing a continuing Transfusion Help Sheet based on the model presented in the Toolkit. We will post this Help Sheet for download when it is complete; our estimated date for posting is October 1, 2013.
This informational resource was developed by CAF in collaboration with the Centers for Disease Control and Prevention. It was supported by Cooperative Agreement #3U27DD000331-05W1 from the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention.