This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
July 27, 2013 – The Staten Island chapter of CAF announces a blood drive on Sunday, August 4, 2013 at Our Lady of Pity Church, 1616 Richmond Avenue, in Staten Island, NY. The blood drive runs from 8:15 a.m. to 2:15 p.m. For more information, contact Terri DiFilippo at streganonaterri@aol.com.
July 19, 2013 – Open House with Cooley’s Anemia Foundation representatives at Children’s Hospital Los Angeles on July 25 & 26! Please join Cooley’s Anemia Foundation’s Social Worker, Kathleen Durst, MA, LCSW, and National Communications Director Craig Butler for a special Open House on July 25 and 26. Come talk to the Foundation about the […]
July 17, 2013 – What happens in Washington DC and in state government can have a profound effect on people living with thalassemia. Making your needs and opinions known is not just part of the democratic process; it can influence decisions that have an impact on you and others in the thalassemia community. Now CAF […]
July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy? Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart? Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]
July 11, 2013 – Liver problems are often a problem for people with thalassemia. Here are some steps that you can take to help prevent them: Learn more about liver issues in thalassemia. Click here.
July 9, 2013 – Cardiac issues are often a problem for people with thalassemia. Here are some steps that you can take to help prevent them: Click here to learn more about cardiac issues in thalassemia.
July 3, 2013 – The North Shore Long Island Chapter of UNICO presented CAF with a very generous donation of $10,000 at the recent CAF Patient~Family Conference. “CAF is so honored to receive this lovely contribution from this marvelous chapter of UNICO,” says Gina Cioffi, CAF National Executive Director. “The members of UNICO are known for […]
July 2, 2013 – As everyone in the thalassemia community knows, maintaining an adequate blood supply is crucial. And blood drives play a crucial role in keeping the supply up. But did you know that hosting a blood drive might help you with your college tuition payments? Some blood collection organizations offer college scholarships of […]
July 1, 2013 – Peer-reviewed medical journals report on studies that provide valuable medical information to scientists, researchers and doctors. The Cooley’s Anemia Foundation frequently provides links to articles from these journals that may be of interest to the thalassemia community. Below are links to some recent articles that relate to people with thalassemia and […]
June 7, 2013 – “You have nothing to lose but so much to gain!” So says Rosemarie Walto-Campagnone when asked what she would say to someone considering attending a CAF Patient~Family Conference. (Click here for information on the 2013 Conference, June 28-30 in Philadelphia.) Rose, who has thalassemia, doesn’t know exactly how many Patient~Family Conferences […]
