Save the date! The CAF 2014 Patient~Family Conference will be held the weekend of June 20-22 in Chicago. Check back here soon for more information.
Save the date! The CAF 2014 Patient~Family Conference will be held the weekend of June 20-22 in Chicago. Check back here soon for more information.
Care Walk is set up to provide maximum flexibility for those who want to Walk. You can decide to do a personalCare Walk with just you and few friends or family members, or you can organize a larger Walk that’s open to the public. Below are some of the larger Walks that are being organized for this […]
April 12, 2013 – The Cooley’s Anemia Foundation is pleased to announce the receipt of an unrestricted educational grant in the amount of $100,000 from ApoPharma. This money will be used to support a range of CAF programs and services, including major sponsorship of the upcoming CAF 2013 Patient~Family Conference in Philadelphia on June 28-30. […]
April 11, 2013 – “I would like to encourage everyone to participate in the Care Walk in even the smallest fashion because you may not know the impact you could be making for future generations.” So says Chi Pham, who along with Faye Lam and several other DC area supporters is organizing this year’s “Team […]
April 10, 2013 – The Cooley’s Anemia Foundation (CAF) has been a part of a steering committee with Centric Health Resources, the Patient Centered Health Management® organization that dispenses Ferriprox, to help develop education materials and opportunities to increase treatment compliance. One of the exciting new opportunities that Centric has asked CAF to continue to help them […]
One of the great things about the Cooley’s Anemia Foundation’s Care Walk is that, because of its flexibility, a Care Walk can be held just about anywhere. Where would you like YOUR Care Walk to take YOU? Maybe to some of the places below? If you haven’t already, sign up for a Care Walk today! […]
April 5, 2013 – CAF is thrilled to announce the receipt of a very generous bequest from the Sam and Lorenza DeMuro Charitable Trust. The bequest is in the form of a multi-year donation of $150,000 per year. The funds from this bequest will be split equally between the Foundation’s medical research and patient services […]
April 4, 2013 – Erin Dean and her “A Team” will be Care Walking at Hoboken Waterfront Park, while Erin’s sister, Katherine, will lead a Walk in Atlanta. (Click here for the A-Team’s Care Walk page!) Erin’s Story: Erin got involved in Care Walk last year because her husband, who has beta thalassemia major, had recently faced […]
March 28, 2013 – Sharon Radonis is once again organizing a Care Walk for May 5, this one to be held at Bellport Village Marina in Bellport, NY. CAF caught up with her in the midst of all her planning to talk to her about why she is so dedicated to Care Walk. Sharon’s Story: […]
March 28, 2013 – Shire, a specialty biopharmaceutical company, is currently in clinical trials with a new iron chelator. Below, Shire responds to questions from CAF concerning the status of the drug, currently known as SPD602. How did Shire become interested in SPD602? In April 2012, Shire acquired FerroKin BioSiences, Inc. and the iron chelator […]