Tag: Cooley’s anemia
Wednesday, August 21st, 2013
August 21, 2013 – If you or your child needs to talk with school personnel about your experience with thalassemia and how it may impact attendance or schoolwork, CAF has a new publication that can help: The School Toolkit for People with Transfusion-Dependent Thalassemia. Over the years, the Cooley’s Anemia Foundation has heard from some patients […]
Read more
: Blog, News, person with thalassemia
: Cooley's anemia, school, thalassemia, transfusions
Monday, July 15th, 2013
July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy? Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart? Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]
Read more
: Blog, Donors, medical professional, Medical Research, News, person with thalassemia
: Cooley's anemia, fellowships, grants, medical research, research, thalassemia
Thursday, July 11th, 2013
July 11, 2013 – A study recently published in the medical journal Magnetic Resonance in Medicine concludes that Spin-Density Projection-Assisted MRI measurement of liver iron concentration (LIC) is “a reliable and accurate method for estimation of LIC that is suitable for diagnosis and management of patients with iron overload.” The study, entitled “Multicenter validation of […]
Read more
: News, person with thalassemia
: Cooley's anemia, iron measurement, liver, thalassemia
Thursday, July 11th, 2013
July 11, 2013 – Liver problems are often a problem for people with thalassemia. Here are some steps that you can take to help prevent them: Learn more about liver issues in thalassemia. Click here.
Read more
: Blog, News, person with thalassemia
: complications, Cooley's anemia, hepatitis, liver, liver disease, prevention, thalassemia
Friday, June 14th, 2013
June 14, 2013 – It’s the New York Mets vs. the Atlanta Braves on July 22 and here’s a chance for you to take in an awesome game and do some awesome good at the same time. The Queens chapter of CAF invites you to watch this action-packed game from the Modell’s Clubhouse at Citi […]
Read more
: Events
: baseball, Cooley's anemia, fund raiser, fundraiser, NY Mets, thalassemia
Friday, June 14th, 2013
June 14, 2013 – Today is World Blood Donor Day, a day to celebrate the generosity of all those who donate blood and to raise awareness of the need for blood donations. Individuals with thalassemia, many of whom require red blood cell transfusions on a regular basis, are aware of the importance of blood donation. […]
Read more
: News
: blood, blood donors, Cooley's anemia, thalassemia
Thursday, June 6th, 2013
June 5, 2013 – Help the Cooley’s Anemia Foundation and the New York Mets hit one out of the field for those with thalassemia! On August 23, it’s Cooley’s Anemia Night at Citi Field in Queens, NY as the Amazin Mets take on the Detroit Tigers! In an effort to create awareness about Cooley’s anemia, […]
Read more
: Blog, Events, News
: Cooley's anemia, Detroit Tigers, events, Mets, thalassemia, Third Eye Blind
Tuesday, May 14th, 2013
May 14, 2013 – A big shout out to Gabriel Theophanous, President of the UK Thalassaemia Society, for competing in his second Virgin London Marathon – and for shaving 30 minutes off his past time! This is a tremendous achievement and demonstrates once again that advances in treatment are helping more people with thalassemia meet and […]
Read more
: Blog, News, person with thalassemia
: Cooley's anemia, marathon, thalassemia
Tuesday, April 30th, 2013
April 30, 2013 – The medical journal Pediatric Blood and Cancer published online on April 23 a study entitled “The Palatability and Tolerability of Deferasirox Taken With Different Beverages or Food.” This is known to many in the thalassemia community as “the Exjade food study;” as the official title suggests, it looks at the option […]
Read more
: medical professional, News, person with thalassemia
: Cooley's anemia, iron chelation, medical research, research, thalassemia
Monday, April 22nd, 2013
April 22, 2013 – The 2013 Patient~Family Conference is coming (June 28-30) in Philadelphia. This is an incredible opportunity for thalassemia patients and family members to get together, hear a lot of important medical information, ask questions and have the chance to socialize. You really don’t want to miss it! We thought you might like […]
Read more
: Blog, News
: conference, Cooley's anemia, thalassemia