Tag: Cooley’s anemia

2013 Care Walk Locations

Care Walk is set up to provide maximum flexibility for those who want to Walk.  You can decide to do a personalCare Walk with just you and few friends or family members, or you can organize a larger Walk that’s open to the public.  Below are some of the larger Walks that are being organized for this […]

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CAF Receives $100,000 Grant from ApoPharma

April 12, 2013 – The Cooley’s Anemia Foundation is pleased to announce the receipt of an unrestricted educational grant in the amount of  $100,000 from ApoPharma.  This money will be used to support a range of CAF programs and services, including major sponsorship of the upcoming CAF 2013 Patient~Family Conference in Philadelphia on June 28-30. […]

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Making an Impact: Why I Care Walk

April 11, 2013 – “I would like to encourage everyone to participate in the Care Walk in even the smallest fashion because you may not know the impact you could be making for future generations.” So says Chi Pham, who along with Faye Lam and several other DC area supporters is organizing this year’s “Team […]

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Opportunity to Serve as a Peer Health Coach for Thalassemia

April 10, 2013 – The Cooley’s Anemia Foundation (CAF) has been a part of a steering committee with Centric Health Resources, the Patient Centered Health Management® organization that dispenses Ferriprox, to help develop education materials and opportunities to increase treatment compliance.  One of the exciting new opportunities that Centric has asked CAF to continue to help them […]

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Empowered to Make a Difference: Why I Care Walk

April 4, 2013 – Erin Dean and her “A Team” will be Care Walking at Hoboken Waterfront Park, while Erin’s sister, Katherine, will lead a Walk in Atlanta.  (Click here for the A-Team’s Care Walk page!) Erin’s Story: Erin got involved in Care Walk last year because her husband, who has beta thalassemia major, had recently  faced […]

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Shire Developing Oral Chelator

March 28, 2013 – Shire, a specialty biopharmaceutical company, is currently in clinical trials with a new iron chelator.   Below, Shire responds to questions from CAF concerning the status of the drug, currently known as SPD602. How did Shire become interested in SPD602? In April 2012, Shire acquired FerroKin BioSiences, Inc. and the iron chelator […]

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Sponsorship Deadline for TIF Conference is May 15

March 23, 2013 – The Thalassaemia International Federation (TIF) has announced that it will be awarding a limited number of sponsorships to the 15th International Conference for Patients and Parents in Abu Dhubai on October 22-23, 2013.  Applications for these sponsorships must be submitted by May 15. Eligibility requirements and further information can be downloaded […]

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