The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
The Centers for Disease Control and Prevention (CDC) recently launched a Thalassemia Healthcare Provider Resource Toolkit.
bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.
This week’s spotlight is all about Team Ficarra. Talk about longevity – the Ficarra family is one of the founders of the Cooley’s Anemia Foundation!
Fellowships
February 27, 2014 – Registration is now open for CAF’s 2014 Patient~Family Conference! This amazing annual event will be held June 20-22 at the Intercontinental Chicago-O’Hare Hotel in Rosemont, Il. Entitled “Perspectives & Strategies for Thalassemia Care & Curative Options,” the Conference is a unique opportunity for any individual with thalssemia and their family members […]
February 25, 2014 – It may have been a rough winter, but the snow ought to be gone by May 7 – the date of the Staten Island chapter of CAF’s 10th annual Charity Golf Outing! This annual event has become one of the most anticipated for area golfers, whether dedicated enthusiasts or occasional links-walkers. […]
January 29, 2014 – Registration is open for the Cooley’s Anemia Foundation’s 2014 Care Walk on May 4, 2014! Be a part of this important community builder and fund raiser to fight thalassemia! Click here to learn more!
January 10, 2014 – Residents of Staten Island, NY: Our Lady of Pity Church and the Staten Island Chapter of Cooley’s Anemia Foundation are hosting their annual winter blood drive on Sunday, January 26, from 8:15 a.m. to 2:15 p.m. Please make a special effort to come and donate blood if you are able! Information: […]
September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here. (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]