November 21, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Management of the Non-Transfused Patient.” More videos will be posted as they become available. Keep an eye out for information on the 2013 Patient~Family Conference. We will post […]
November 19, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Improving Bone Health in Patients with Thalassemia.” More videos will be posted as they become available. Check back at this website for information on the 2013 Patient~Family […]
November 13, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. Because we have recently received questions concerning nutrition, we are posting here the presentation on “Recommendations for Dietary Intake: Focus on Micronutrients.” More videos will be posted as they become available. Check back at this […]
September 26, 2012 – This fall, as Detroit unveils its latest new models, why not spend a little time with a few classic cars as well? Join the Suffolk chapter of CAF on October 21, 8:00 a.m. – 4:30 p.m., for its first ever “Classic Car Show and Test & Tune.” Hosted by classic car […]
September 4, 2012 – Ever felt like thanking people who have donated blood for you or a loved one? Or wanted to share your own story about why you donate blood? America’s Blood Centers has a special website just for that purpose. < Simply go to http://thanksdonor.com and you can read stories from others or […]
August 2, 2012 – The Middletown Sons of Italy Lodge #2844 is holding a special Golf Outing to benefit CAF and the lodge’s scholarship fund at the Bella Vista Country Club in Marlboro, NJ on Monday, August 13. The day starts with registration and a hot breakfast at 8:00 a.m., followed at 9:00 with a […]
Agugust 3, 2012 – Football + Cigars The incredible CAF Queens chapter’s 5th Annual Monday Night Football Cigar Night, which this year will be held on September 17, 2012 at Vetro by Russo’s on the Bay, starting at 7:00 p.m. Be there for one of the liveliest events of the year! The night includes a […]
August 2, 2012 – The Cooley’s Anemia Foundation is allocating $317,500 in medical research funding this year to a range of important and exciting projects. This funding represents one new and two renewed CAF Medical Fellowships; two new and two delayed clinical research grants; and a new gene therapy research grant. Funding medical research has long been […]
July 21, 2012 We are very sad to report that Gargi Pahuja, a long time member of the CAF Board, a former President of TAG, a former Patient Services Director for CAF, and a former Board member of TIF (Thalassaemia International Federation) passed away on Saturday, July 21, 2012. Gargi was a remarkable person who […]
July17, 2012 Memorial Sloan-Kettering Cancer Center will begin evaluating a new stem-cell-based gene therapy for patients with the inherited blood disorder beta (β)-thalassemia. The clinical trial is the first to receive US Food and Drug Administration approval to treat this disease with genetically engineered cells and is a culmination of more than two decades of […]
