April 4, 2013 – Erin Dean and her “A Team” will be Care Walking at Hoboken Waterfront Park, while Erin’s sister, Katherine, will lead a Walk in Atlanta. (Click here for the A-Team’s Care Walk page!) Erin’s Story: Erin got involved in Care Walk last year because her husband, who has beta thalassemia major, had recently faced […]
January 6, 2013 – Registration for CAF’s Care Walk 2013 is now open! Sign up today to participate in the May 5 event by clicking here! Care Walk is the Cooley’s Anemia Foundation’s annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the country. Rather than hold one huge […]
January 23, 2013 – Aaron Cheng, a sophomore at Harvard University who has beta thalassemia major, has been awarded a 2012 Scholarship Award from the Asian Pacific Community Fund in association with Verizon. He is one of five recipients in this awards cycle. The Asian Pacific Community Fund partners with Verizon to financially assist students […]
January 10, 2013 – CAF has learned that the first U.S.-based clinical trial in gene therapy for beta-thalassemia has begun treating trial participants. The Phase 1 study, the official title of which is “ß-Thalassemia Major With Autologous CD34+ Hematopoietic Progenitor Cells Transduced With TNS9.3.55 a Lentiviral Vector Encoding the Normal Human ß-Globin Gene,” is […]
August 2, 2012 – The Cooley’s Anemia Foundation is allocating $317,500 in medical research funding this year to a range of important and exciting projects. This funding represents one new and two renewed CAF Medical Fellowships; two new and two delayed clinical research grants; and a new gene therapy research grant. Funding medical research has long been […]
July17, 2012 Memorial Sloan-Kettering Cancer Center will begin evaluating a new stem-cell-based gene therapy for patients with the inherited blood disorder beta (β)-thalassemia. The clinical trial is the first to receive US Food and Drug Administration approval to treat this disease with genetically engineered cells and is a culmination of more than two decades of […]
June 12, 2012 – Robert Mannino knows more about blood transfusions than most people. Diagnosed with thalassemia when he was just six months old, he’s spent much of his life in clinics, hooked up to transfusion machines for treatment of the disorder Now 20 years old and a junior at the Georgia Institute of Technology […]
April 6, 2012 – My name is Aaron Cheng, and I’ve just completed my first semester of college at Harvard University. I don’t remember when I was diagnosed with beta thalassemia major, which is also known as Cooley’s Anemia, but my parents tell me it was when I was around one year old. We were […]
February, 2012 – Rahul Kapoor is the sole member of his immediate family with thalassemia – but his entire family shoulders the struggle. They’ve rallied around him and supported one another since he was diagnosed with the blood disorder when he was four years old. Now nineteen, Rahul is a sophomore at the University of […]
December 15, 2011 – Every year, the world famous New York City Marathon attracts more than 45,000 runners – and this year, one of those runners was Ben Li, a man with beta thalassemia major. Ben, competing in the NYC Marathon for the first time, finishing the 26.2 miles in under 5 hours. This is […]
