May 6, 2009 – From CAF National Executive Director Gina Cioffi: As you know, clinical trials are vitally important steps in developing new therapies for thalassemia and its complications, as well as in advancing the search for a cure. Without clinical trials, there would be no chelators (oral or otherwise), no T2* measurements, no non-invasive […]
May 6, 2009 – With the current recession, CAF’s Patient Incentive Awards are more valuable than ever. The Foundation is happy to announce that 25 thalassemia patients received a total of $29,500.00 in Patient Incentive Awards this year. Any thalassemia major or intermedia patient pursuing higher education who is a U.S. resident can apply […]
May 4, 2009 – Several people have contacted CAF asking if there are any special precautions that people with thalassemia need to consider in terms of the current swine flu situation. We forwarded this question to Dr. Ellis Neufeld, the Chair of the CAF Medical Advisory Board. For more information on Swine Flu, click […]
May 5, 2009
May 5, 2009
May 5, 2009 – Jennie Chieco, whose sister Michelle has thalassemia, has collaborated with a fellow student at Sacred Heart School in Greenwich, CT to hold the school’s first blood drive, according to an article in the May 5 Greenwich Post. On Facebook? Join the Cooley’s Anemia Foundation group! Click here. The blood drive, organized with the […]
April 27, 2009 – Homework’s not so easy with Vikram around. YouTube? Need help dealing with issues related to thalassemia? Visit the Cooley’s Anemia Foundation YouTube Page and Check Out Our Videos. Click here. CAF Patient Services is here to help! Eileen Scott, CAF Patient Services Manager, (800-522-7222, x205 or eileen.s@cooleysanemia.org This e-mail address […]
Click here.
CAF was forwarded the following information from Focus Pointe Global and Paula Gottlieb Herman, both of which are looking for thalassemia patient to participate in market research studies in New York City the week of April 27. CAF is providing this for informational purposes only and does not endorse any specific market research projects. The […]
April 20, 2009 – The Centers for Disease Control and Prevention (CDC) has announced a funding opportunity for a “Population-based Surveillance for Hemoglobinopathies” program. The purpose of this program is to provide support through CDC cooperative agreements for non-research activities to collect and link data on selected samples of patients for population-based estimates. This announcement […]
