News

Comedy Show to Benefit CAF

June 9, 2009 – Get your laugh muscles in shape and help fight thalassemia at the same time on June 27. That night at the Production Lounge (113 Franklin Street in Brooklyn, NY), Paul Tucci and Friends are presenting a Comedy Night to benefit the Cooley’s Anemia Foundation. Join Vic DiBitetto, Richie Triolo and Hassan […]

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Thal Pals #15

June 8, 2009 – Hepcidin? What’s that? Next episode will be posted on 6/22/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. CAF Patient Services – Here to Help Click here to read more about this […]

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Thalassemia Clinical Trials: Insights from the Community

June 1, 2009 – Gina Cioffi, CAF National Executive Director, recently made a presentation at a National Institutes of Health workshop, speaking about “Clinical Trials in Thalassemia: Imperatives and Insights from the Community.” Below is the PowerPoint slides that accompanied this presentation.

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Exjade Label Update

May 26, 2009 – Following is a recent update to the label for Exjade from April, 2009. On June 10, 2009, MedScape published an article that presented more details on the Exjade label update. Below are excerpts from that piece. According to the FDA, postmarketing cases of hepatic failure have been reported in patients receiving deferasirox. […]

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Study on Stem Cells from Hair, Skin

May 27, 2009 – Doctors at Albert Einstein College of Medicine are looking for volunteers with hemoglobinopathies (Hb H, thalassemias, and sickle cell disease) to participate in a research study We are testing procedures to correct genes that cause sickle cell disease and thalassemia in stem cells created from hairs or skin cells. We are […]

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Thal Pals Comic #14

May 25, 2009 – Helena and Kevin discuss some challenges. Next episode will be posted on 6/08/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. Stay One Step Ahead of Your Care! Often we get called […]

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NIH Announces Funding Opportunity

May 11, 2009 – The National Institutes of Health announced a new funding opportunity of interest to the thalassemia community on May 1, 2009. Below is information from that announcement. Purpose. This Funding Opportunity Announcement (FOA) is a call for the application of imaging and other non- or minimally-invasive […]

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Thal Pals Comic #13

May 11, 2009 – Helena has a new job. Next episode will be posted on 5/25/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. On Facebook? Join the Cooley’s Anemia Foundation group! Click here. Do You Have Patient […]

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