News

“Springtime in New York" Gala: Top 5 Reasons to Go

April 15, 2009 – CAF and the Child Reach Foundation’s annual “Springtime in New York” Gala is coming April 30. Below are our top 5 reasons why YOU should join us at the festive event. 5. Everyone loves a bargain. Hey, we know times are tough

Read more


Market Research Firm Looking for Thalassemia Patients

April 13, 2009 – CAF was forwarded the following information from Adept Consumer Testing, a market research firm. CAF is providing this for informational purposes only and does not endorse any specific market research projects. The Foundation does not ask for or seek any financial remuneration for posting this information; we provide this service […]

Read more


Thal Pals Comic Strip #11

April 13, 2009 – Tina’s excited about an upcoming trial. Next episode will be posted on 4/27/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. For episode 10, click here. For episode 9, click here. For episode […]

Read more



HQK-1001 Gets Orphan Drug Designation in Europe

March 31, 2009 – HemaQuest Pharmaceuticals announced on March 28, 2009 that it has received two orphan medicinal product designations from the European Commission for its product HQK-1001 for the treatment of sickel cell disease and beta thalassemia. The new designations are in addition to orphan drug designations for both diseases granted in the United […]

Read more


Information Available on National Cord Blood Program

March 30, 2009 – On October 1, 2008, the Related Donor Cord Blood Program was launched by the U.S. Health Resources and Services Administration (HRSA) and the National Marrow Donor Program (NMDP) to help families in which a first degree relative has been diagnosed with a medical condition that might benefit from a cord blood […]

Read more


Thal Pals Comic #10

March 30, 2009 – The comic strip continues with episode 10. Next episode will be posted on 4/13/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. For episode 9, click here. For episode 8, click here. Need […]

Read more


NIH Schedules Thalassemia Workshop

March 25, 2009 – The National Institutes of Health, the National Heart Lung and Blood Institute and the National Institute of Diabetes and Digestive and Kidney Diseases will hold a special thalassemia workshop on May 20 and 21. Entitled “Workshop on Thalassemia: Clinical Priorities and Clinical Trials,” the event will be held in Rockville, MD. […]

Read more


Novartis Offers ScriptAssist Program for Exjade

March 10, 2009 – CAF would like to make patients aware of a new program offered by Novartis that may reduce your Exjade prescription copayments. This program –The Exjade ScriptAssist Program – provides an opportunity for patients to save up to $900 on their Exjade prescription copayments.   The Exjade ScriptAssist Program will run through May 31, […]

Read more



Secured By miniOrange