This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
March 6, 2015 – San Diego-based La Jolla Pharmaceutical Company is currently seeking qualified patients for consideration in their trial in Patients at Risk for Iron Overload using its novel formulation of hepcidin (LJPC-401). Hepcidin, an endogenous peptide hormone, is a naturally occurring regulator of iron absorption and distribution. Manipulation of hepcidin has the potential to […]
February 12, 2016 – The Staten Island chapter of CAF is holding its 2nd Annual Zumba Fund Raiser for CAF on Saturday, February 27 from 11:30 am to 12:30 pm. Come to Lucille Roberts at 430 89th Street in Bay Ridge, Brooklyn for an hour of sensational Zumba-ing for a great cause! You can download […]
Registration is now open for CAF’s Care Walk 2016! Click here for more information!
January 13, 2016 – Nothing makes a winter evening more special than dancing in a room full of incredible people. That’s why an incredible person like you needs to make a point of attending the New Jersey chapter of CAF’s annual “Let Your Heart Dance” on February 6, 2016! One of CAF’s most eagerly-anticipated annual events, […]
January 11, 2016 – CAF supporters, take note of two special blood drives in January (which, by the way, is National Blood Donor Month – an excellent time to make a blood donation!) January 18, Astoria CAF Board member Maria Hadjidemetriou has organized a blood drive at Gym-Azing, 27-14 23rd Avenue in Astoria, Queens. The […]
January 5, 2016- The Cooley’s Anemia Foundation is pleased to announce that Aaron Cheng has been named recipient of the 2015 CAF-ApoPharma Distinguished Scholar Award. The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Aaron is currently […]
December 16, 2015 – In the article below, Ellen Fung, PhD, RD of UCSF Benioff Children’s Hospital Oakland and Farah Sultan, RD of McMaster University, share some nutritional information for people with thalassemia. One of the most common questions we are asked as nutritionists is, “What should I be eating?” In many ways, the diet for […]
Dr. Maria Domenica Cappellini presented at the 10th Cooley’s Anemia Symposium on “Clinical Features of Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia […]
December 9, 2015 – The American Society of Hematology (ASH) held its annual meeting from Dec. 4 – 8 in Orlando, FL, and CAF was once again there to distribute information, meet with clinicians and researchers and attend educational and scientific meetings of relevance to the thalassemia community. Below is information on a few of […]
Dr. Ellen Fung presented at the 10th Cooley’s Anemia Symposium on “Nutrition for Patients with Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia field […]
