This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
May 6, 2016 – Celgene in partnership with Acceleron is currently conducting a Phase 3 study of the protein luspatercept in beta-thalassemia called The BELIEVE Study. Previous studies indicate that luspatercept helps increase the production of mature red blood cells. In a Phase 2 study of adult patients with beta-thalassemia, luspatercept was shown to increase hemoglobin levels and to decrease […]
May 6, 2016 – In honor of International Thalassemia Day (May 8), the Centers for Disease Control and Prevention (CDC) has posted information about thalassemia on their website and a new profile of a thalassemia patient on their Flickr album. You can view the CDC page by clicking here and the new profile of Yanyi […]
May 5, 2016 – The Staten Island chapter of CAF held its annual golf outing on May 4 and the event was a definite hole-in-one. More than 130 people attended this wonderful day on the links at the South Shore Golf Club. The weather was cloudy, but spirits were sunny and shiny and a splendid […]
March 7, 2016 – Registration is now open for CAF’s 2016 Patient-Family Conference! For 2016, this always-anticipated annual event will be held July 8-10 at the Hilton San Diego Mission Valley in San Diego, CA. Entitled “Reaching New Heights,” the 2016 Conference is a unique opportunity for U.S. individuals with thalassemia and their family members (parents, […]
March 31, 2016 – Since their first Care Walk last year, the Michelangelo family has invested a great deal of time and heart to serving the thalassemia community. They have held several fundraisers in their hometown of Boston, including a popular meat raffle event during which donors can bid on meat baskets from the local […]
March 13, 2016 – Staten Island’s South Shore Golf Club is the place to be on Wednesday, May 4 as the Staten Island chapter’s 2016 Cooley’s Anemia Golf Outing takes to the greens. Registration and lunch are at 11:00, in advance of the 12:30 shotgun start. Cocktails and dinner follow at 6:00. Want more? There’s also […]
March 11, 2016 Register for 2016 Care Walk at http://bit.ly/cafcarewalk! For a list of Care Walk Locations, click here.
March 9, 2016 – The Thalassaemia International Federation (TIF) is seeking U.S. patients to help test two new projects geared toward the thalassemia community. The projects, the ThaliMe app and a Thal e-Course, are described below. Those interested in participating or learning more should contact TIF at thalassaemia@cytanet.com.cy. ThaliMe: TIF seeks 10 patients to pilot […]
