November 19, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Improving Bone Health in Patients with Thalassemia.” More videos will be posted as they become available. Check back at this website for information on the 2013 Patient~Family […]
November 13, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. Because we have recently received questions concerning nutrition, we are posting here the presentation on “Recommendations for Dietary Intake: Focus on Micronutrients.” More videos will be posted as they become available. Check back at this […]
August 2, 2012 – The Cooley’s Anemia Foundation is allocating $317,500 in medical research funding this year to a range of important and exciting projects. This funding represents one new and two renewed CAF Medical Fellowships; two new and two delayed clinical research grants; and a new gene therapy research grant. Funding medical research has long been […]
July17, 2012 Memorial Sloan-Kettering Cancer Center will begin evaluating a new stem-cell-based gene therapy for patients with the inherited blood disorder beta (β)-thalassemia. The clinical trial is the first to receive US Food and Drug Administration approval to treat this disease with genetically engineered cells and is a culmination of more than two decades of […]
May 31, 2012 – The Cooley’s Anemia Foundation strongly supports the consensus recommendations of the Thalassemia Clinical Research Network (TCRN) to obtain at least annual MRI for hepatic iron and cardiac iron T2* MRI beginning at age 10 years (with more frequent measurements considered for patients with cardiac T2* <10-20 ms) and an annual liver […]
December 16, 2011 – Results from THALASSA, a placebo-controlled study examining the benefit of iron chelation with Exjade® (deferasirox) in patients with non-transfusion-dependent thalassemia (NTDT), were presented on December 13 at the 53rd Annual Meeting of the American Society of Hematology in San Diego. “Patients with NTDT” could include some individuals with beta thalassemia intermedia, […]
February 10, 2011 – Dr. Ellen B. Fung’s informative and valuable presentation on “Nutrition and Thalassemia,” the subject of CAF’s first webinar, is now available for viewing on the CAF website. Dr. Fung (PhD, RD, CCD), who is am Associate Clinical Research Scientist at Children’s Hospital & Research Center, Oakland and an Associate Adjunct […]
