December 2, 2013 – bluebird bio, Inc. today announced that the first subject with beta-thalassemia major has been enrolled in its phase 1/2 HGB-205 study in France and has undergone infusion with bluebird bio’s LentiGlobin drug product in an autologous hematopoietic stem cell transplantation. “We believe gene therapy represents a potentially new and exciting treatment […]
October 21, 2013 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH IN THALASSEMIA The Cooley’s Anemia Foundation invites national and international applications for 2014-2015 grants to support ongoing clinical research projects in Thalassemia. The goal […]
September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here. (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]
August 13, 2013 – Healthy People 2020 will host a special webinar on “The Impact of Systems Improvements: A Progress Review Webinar on Healthcare-Associated Infections & Blood Disorders and Blood Safety” on Wednesday, August 28, from 1:00-3:00 p.m. EDT. Join HHS Assistant Secretary for Health, Dr. Howard Koh, and experts from the field on Wednesday, […]
August 2, 2013 – The American Society of Hematology (ASH) will present the Society’s highest honor, the 2013 Wallace H. Coulter Award for Lifetime Achievement in Hematology, to Professor Sir David Weatherall, MD, who has a long history of important work in thalassemia. The ASH press release, which is excerpted below, states that this award […]
July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy? Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart? Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]
July 1, 2013 – Peer-reviewed medical journals report on studies that provide valuable medical information to scientists, researchers and doctors. The Cooley’s Anemia Foundation frequently provides links to articles from these journals that may be of interest to the thalassemia community. Below are links to some recent articles that relate to people with thalassemia and […]
June 20, 2013 – The American Heart Association (AHA) has released a consensus statement on “Cardiovascular Function and Treatment in Beta-Thalassemia Major.” Published online in the AHA journal Circulation, the document states in part that “central to early identification of cardiac iron overload in TM (thalassemia major) is the estimation of cardiac iron by cardiac […]
May 28, 2013 – CAF has long been a champion of medical research which explores potential curative approaches to thalassemia. The Foundation has been a fierce, proactive advocate with government agencies and private sources on the need for increased funding for gene therapy and other stem cell-based initiatives. Our voice has been one of the […]
May 14, 2013 – Dr. Renzo Galanello, an international expert in the field of thalassemia, passed away it was announced on May 13. In a letter, the Thalassaemia International Federation wrote the following: The world of Thalassaemia, doctors, scientists and the global patients community, have today been informed about the premature death of Professor Renzo […]
